About stuff.

I had a pretty busy day yesterday. First of all, I wrote and emailed to everyone that I could think of for possibly help for any kind of a donation for my medical needs. I even wrote to my towns news paper. I got a responce back saying that she sent my letter to the reporter, and he will contact me on Monday. I don't know what that means. I asked in my letter if I should put something in the news paper. But thats all she wrote back. So I don't know. Or if it means that he will put something in the news paper for me? But I'm still not foing to stop looking or calling or writing to people. I'm very determind right now. After I was finishing up on doing that, I got a call from my daughter. She wanted me to come over and watch my grandson for a bit while she went to drop some thing off. He is still sick with a cold and she didn't want to take him out. I went over, which only takes me about 4 minutes to get there. She was gone maybe 45 minutes if that. :o) All me and my grandson did was sit and watch Seame Street! :o) He loves the show! :o) She came back, and I came home. Right whne I got in the house, the mail came, and I got my check. So, since I was still dressed and had my coat on I went ahead and cashed it and got my money orders that I needed and a few other things and come home. It took me all day to do that. But, I did go and get that cane that was on sale that I wanted and need. :o) It was a very good price, only $12.00. :o) Really good compared to most of them that were $49.99! Thats just way to high for me. When I got home, I noticed that my husband was already home, and had taken the dog and went somewhere. It was so good to know that I wasn't going to be alone for very long. :o) And I wasn't. :o) He came home right after I got my pj's back on. :o) While I was at the pharmacy getting my cane, I asked them if they knew of any kind of orginazations that could possibly help me with getting what I needed. They gave me a phone number to call a place in Dayton called Advanced Medical. It's worth a try to give them a call. :o) I didn't get much sleep tonight like I did the previous nights. 2 and a half hours. I'll just try and get a nap in some time today. My best friend and her daughter came over last night and she brought over a few of her games! :o) We played Name That Tune, The 80's Addition! Boy was that fun! lol :o) It came down to my best friend and me! lol My best friend won! :o) It was close! LOL:o) She left them here for tonight. We are having people over for New Years Eve. :o) I can't wait! My sister and her boy friend are coming too! :o) I'm going to make jello shots for eveyrone. lol I've never made them, but they sure sound good! Too bad I can't drink! LOL :o) My husabnd got a few things as well for a small type of a buffat! :o) Too bad my mom can't make it! I would love for her to be here! :o)

So...today I guess I don't know what I'll be doing first. I need to get clean sheets out because my sister and her boy friend are going to stay the night! YAY! :o) I know I need to make a list so I can make sure that I remember to get what I want to do done. :o) I'll forget if I don't. :o) I will be also making poork roast and sour kraut. I do that every year. :o)

Well, I think thats all for now. I am very sore from all of what I did yesterday. Again, if any one knows of any one or any place that would/could donate, please let me know. Or if you have any other ideas for me, please let me know. :o) I'd really appreciate it. :o) I was even going to try our mayor! :o) I still just might! :o) God bless everyone! :o)

HAPPY NEW YEAR!

 

Just stuff.

Well, as you can see, yesterday was just an up and down day for me. I have a feeling that my husband is having a hard time with what I told him about my doctors visit. I think the prescription for the scooter or a motorized wheel chair is what got to him. He knows by that, that I will be getting worse from this day on. He kept asking me all night if I was ok, and if I needed anything. He does ask me that, but it was so much more often. He also asked me how I was doing with what the doctor has told me. I told him yes, I feel very positive about it. And I asked him how he was doing with it. He just looked away, and said that he was ok, but wishes that he can get all of my needs right now for me because he said that he can see how much I need them. And it makes him feel bad that he can't help me in that way. I told him not to worry about it, that I'm ok for right now. He was as well as I was last night, very upset over the fact that we were misslead about the whirl pool tub! He said he just felt like going down to the basment with a sledghammer and smashing it! He was that upset! I told him no, just leave it alone and we will find a way to get what I need somehow. He's not taking this well at all. I'm worried about him. He has so much on his mind as it is, and he doesn't need anything more to worry about. I know that his reations are out of love for me. Because he told me so many times last night how much he loves me, and to make sure that I knew that, which of course I do. :o) I'm not going to stop trying to find a way to get the medical things that I need. I let him know that. He told me that he feels like shit because he can't offord to help me when I most need it. I was sure to let him know that he's not, and I understand why he isn't able to. I love him so much. :o) I told him that what I needed from him doesn't cost anything, and thats just for him to be here for me and to give me hugs. :o) He said that he can do that. :o)

I am still having the same pains as always. That sleeping pill did work for me last night! I got 9 hours of sleep! YAY! :o) I'm still taking the other two medicines, and so far so good with them. Whew! :o) I can tell a difference with the nerve pain one. I can now tell what pain is what. Which helps me to let the doctor know what pain is what and where it is. The other medicine is for severe pain. I can feel it start to work, but I know it has to get in my system more to take effect. Today I should be able to tell a difference. :o) I feel positive about these new medicines. :o) Because if they were going to give me any kind of side effects, it would have happened all ready. :o) And so far they've been helping me. :o) Finally! Since my doctor knows now what I really do have, he can now treat me with different meds. that will help me. :o) YAY! Maybe I need to change the title to this page? Just joking...because I still do have fibromyalgia, but with MS as well.

I suppose thats all for now. God bless you all, and gentle hugs and stay pain free today! :o) Please, all comments are welcomed, they help me through my day. :o)

Just talking............

I've been sitting here thinking ( nothing else to do). I actually listened to someone when they told me that the whirl pool that I bought, was suppose to be a "hot tub package"! My husband and I were told that this certain store had these "packages" because it was out of season and to go out there and get one. Then, I asked where they were, and the person that told us about them showed me, and I went ahead and bought it! I put trust into this person. Now it's money wasted that we didn't have. Because it wasn't what we were told it was, it's a whirl pool tub. Which I can not use. There's a big difference in the two. I shouldn't have listened. I was also told that I would be helped getting a hot tub by someone as well. And then, once again, I put my trust in them. Wrong again! I'm just tired of having this "false hope" when someone tells me something and I actually believe it! How stupid can I be?! Especially when you know that they can do the things they tell you finacially. I don't know how many times we've helped people. And I know they've all were appreciative. But, where are people at when we need help? I don't mean to come off as being cynical, but it really does get to me. I've been doing everything in my power to try and get the medical things that I do need. And it just chaps my ass when I keep running into a brick wall! What I'd like to know is where is all this help at out there that I keep hearing about? I spent all day yesterday on so many different charity sites asking for help! I got nowhere. Even though I have prescriptions. I guess that doesn't matter. Plus, it would be a freakin' tax write off. My husband works his ass off, and we live week by week. We are struggling right now. I do want to make this clear: I am happy for those that I know that does get the help that they need. :o) Because I do know that they deserve it. It's just the ones that I know that do have the money, and choose not to help. I just really needed to get that off my chest. This is in no way to offend anyone. Ok?

I got some news this morning.............

Well....Boy did I get a lot of information about what is going on with me this morning! Finally! :o) I gave that paper that I wrote on what has been going on with me, and then I printed it out. He seen how I was, and I told him what I've been going through since the last visit. He noticed a big change in my condition. He gave me 3 new medicines to take for my pain. One is for nerve pain, and one is for my sleep, and the other is for chronic pain. He said for now they should help me until I get my proper diagonosis from a neurologist that he is sending me to. My doctor is just a primary physician and he said that he is not able to give me the diagnosis that he knows is wrong with me, only a neurologist can. So, I am to go to a new neurologist in March. He told me that fibromyalgia does not progress. Which I already know that. I have something that I knew I've had since 1994. I have progressive multiple sclerosis. But he said he wasn't able to give me that diagnosis, only a neurologist can do it for my insurance reason. I don't understand it but it does make some since in a way. He wrote me out another prescription for a scooter. He said that I need it now! I told him I know that I need It now! I'm having a big problem walking! :o( The wheel chair won't work for me anymore because of my upper muscle pain. I went to get my scripts filled, and I seen a cane that would help me as well. As soon as I get my check, I would like to go and get it while it's still on sale. :o)

Well, I've taken two of my new meds., and they are starting to affect me. I'm getting a bit dizzy, so I need to get off of here. :o) I'll updat when I can. :o) Please leave comments they do get me through my day. :o) God bless you all! :o) And stay pain free. :o)

P.S. What would be nice is if I could find someone out there that could donate a scooter and a hot tub for me. I have scripts for them both, and they would be a tax write off. If any body knows of anyone or any place, I would be so grateful. :o) Thank you! :o)

Just to talk.....

Yesterday was just one of those days. My massage therapist came, and it still hurt like hell! Even she said with as much medication that is in my system, I shouldn't be in so much pain still! Well I agree with that! What's the use of taking them if they're not going to work? My right side seemed to be stiff/rigid. When she was working on my right leg, it was stiff and would jerk. I let her know what had happened on Friday morning with that patch. She read the ER follow up/release paper, and I'm doing exactly what it says to do. I did make an appointment with my doctor, and it's tomorrow, the soonest they can get me in. My jaw was doing that lock thing again on me all day! I still have these weird shakes. I would really like to know what is going on with me! This is all just a bit too much! I'm really worried here! My daughter came over yesterday to do her laundry. :o) My grandson wasn't feeling to well, he was having a stuffy nose. Poor thing. He was laying in my bed for a nap, and I crawled in and layed down with him. :o) When we both got up, my daughter took him and I got up and my whole body started going in this weird shaking thing! I was so bone cold! My whole body was shivering inside and out, and my teeth were actually chattering! I went and put something warmer on, and I was still that way! I just sat down and let "whatever it was" take it's course. What else was there to do? My son and daughter were in the living room and thats were I stayed too, I didn't want to be alone. After awhile, the shaking calmed down and I was feeling a bit warmer. From being extremly hot to being extremly cold is a weird feeling! Right now it's 52 out, and I'm a bit chilly! This just isn't making any sense! I'm just glad that my shildren were here with me yesterday. This is scary enough, but to be alone is frightening for me! I'm going to call my doctor today and see if there was any cancelations and get in today! Please...if anyone has had this happen to them or has any suggestions...Please let me know. I would really appreciate it. :o)

Thanks, and God bless you! And please leave a comment, it just might help me. :o)

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I slept 5 and a half hours last night! Yesss! :o) I am still feeling the same way as I have been. I was all day yesterday as well. I'm so glad that my husband was off of work. :o) He helps me. :o) In fact, when I went to bed last night, he layed down next to me, and thats the last thing I remember! :o) That was so sweet of him. :o) I don't know when he left my bed. My dog must be worried about me too, she keeps following me around where ever I walk to, and lays beside me where I am sitting. :o) I do know that animals do sense things. She stays in bed with me. :o) My daughter dropped by to pick up the rest of their presents from Christmas. I seen my son only a few times, he was in and out a lot. :o) Thats him! :o) lol I didn't do anything at all yesterday. I still can't. My massage therapist is coming this morning. This is going to really hurt. But I know it should make me feel better. :o) I'm still having all the pain I have been. A new one started again...on my right side, near the lower part of my ribs. :o( Boy does it hurt. I still have the shaking. I wish it would go away. Oh well. Just part of my life. I was on line yesterday trying to find orginazations that donate for medical needs. No luck yet. I'm not going to give up. I truly need the 3 wheel scooter and the hot tub. Too bad I don't know of any one that could donate. I've been having a hard time walking with my walker because my legs will get weak and go out grom under me. And to use my wheel chair takes my upper body strength which I just don't have any more. The whirlpool doesn't work because the jets are too low and they don't get the areas of my body. I've been so hot the past few days. I've been wearing my summer clothes and everyone else has been cold. It's usually the other way around! :o) I get so hot that I will actually sweat! I don't know whats going on. I checked my temp. and it was ok. Maybe it's part of the Vicodin that I'm taking. All I know is that I still would never wish this on anyone! Not even my enimies! This is something horrible to go through. In my entire life, I would have never thought there was anything like this! :o( One day, I will figure this thing out. :o) I guess thats all for now. :o) God bless you and gentle hugs! :o)

Another day.......

Yesterday was such a great day! :o) It was just wonderful! :o) I couldn't have asked for a better day! :o) I had my gift....my family with me! :o) It's the most important thing to me, having my children around! :o) My mom even came! :o) She helped me finish up dinner. I couldn't have done it myself. My sister was going to come up, but her boy friend was sick so they couldn't make it. :o( I missed her being here. I got a few pictures of everyone. I also used my present...a new camcorder. :o) I want to watch what I got on it today! :o) My son and daughter made me cry...a good cry...they both gave me things that mean so much to me! :o) LOL...my son said "watch, moms going to cry again!" LOL And I did! lol :o) He gave me pictures of he and his girlfriend! I love pictures because they stop time and I can always have them to look at! :o) He knows how I am about things like that! lol :o) And my daughter...I got her a bear that was for daughters. I seen it, and the verse that was on a wooden heart that had a music box, was beautiful and I had to get it for her! When she opened it, she cried, which inturn made me cry too! :o) The bear was special to me, and she read the verse and cried. We are just very emotional I guess! LOL :o) Yesterday was just a great day! :o) My best friend came over last night and we watched a movie that I've been wanting to see. :o) A great ending to my day. :o) I just was able to stay awake long enough to finish watching the movie. Whew! lol :o) I even slept 8 and a half hours last night! YESSS! :o)

I was still having a hard time getting around and with my pain as well as with the medicines I'm taking. It's been a bit difficult for me to even function normally. My ears are ringing so bad, I can't hear myself talk, I don't know if I'm talking loud enough. I feel very dissconected...My head feels like "static", if that makes since. Like static in a radio, or "the bug fights" on the t.v.! I'm still pretty shaky, and am having these jerking movements all over my body. Involentary muscle movement. Still having trouble controling my eye movements. Just a lot of things thats going on that isn't natural for me. :o( My mom seen one of my muscle lumps on my upper right arm. And she was across the room! I still have them as well. The pain is still coming back. My breathing still doesn't seem right either. It hurts my chest/rib area to laugh, but it didn't stop me from laughing, just had to hold my chest. :o) As soon as I can, I'm going to make an appointment to see my doctor. To be honest, this is kind of scary to go through and not know why.

Well...I hope that everyone had a wonderful Christmas! :o) I sure did! :o) Please keep comments coming! :o) God bless you! :o)