.......Just to let you know, nothing in this journal's entry is toward anyone in specific, I use it to write my feelings, and about my illnesess, and in hopes it might help someone else as I do.I do not pretend nor imatate to be someone I'm not. And if you might take an entry wrong and feel that it is about you, I'm sorry but It isn't, it just may seem to coincide with your own life. And if there is something in what I write that "offends" you, options; don't read, or realize that this IS real life, and get out of your plastic bubble and learn more about it! God bless you!......
Good morning! I hope all are well today!
I want to thank all of you for the e-cards and emails that I recieved yesterday! Thank you!
Yesterday...I was very busy! I had an appointment about my insurance at 9:00. I got a letter in the mail telling me that it was going to stop in September!
At my appointment, whats going to happen is they are putting me on another different one! uuuggghh! Since I was excepted for the Home Care, I guess they have their own insurance that I have to be on! I hope it covers the same things!
After that appointment, I went to Kohl's! :o)~ My husband gave me $40.00 in a card! Woo Hoo! Soooo...I got a new purse, and 2 night gowns! They were all on sale! The purse alone was $59.00! I would never pay that much for one....it was on sale and so were the gowns! So, I got all of those for less then the $40.00! I was proud of myself! When dh came home from work, I told him what he got me for my birthday! LOL :o)
Right when I got home...my daughter called me. She needed my help! She's having a harder time with this pregnancy. She lives on the second floor, which at times I'm not able to climb them to visit. But I had to yesterday because she needed me. I made her some dry toast, chicken soup and some hot tea. Bless her heart! I felt bad that I could stay with her longer because I also had a doctors appointment to go to at 3:00.
When I was leaving, I started down the steps. All of the sudden, my legs were like noodles! I actually thought that I was going to fall down them head first! I just stood there trying to think how to get down them without falling. I hung on to the railing and just went for it! By the time I got to my car, I was very weak!
I get to my appointment with the doctor that I like and I was so weak, I was shaking. My whole body! Again, I was 'fighting' my own body! The doctor came in and this time he looked in my records and was 'adding' things up. From what he wittnessed the last time I was there and then yesterday. My blood pressure was down a bit, but nothing like it was the last time I was there. 72/60! He checked my strength in my legs and arms. In my arms, I was suppose to push his hands up. In my left arm, only my fingers were able to move! In my right arm, just my hand without my fingers! I didn't realize this! In my legs, I couldn't even push! I didn't know that one either! Good grief! And just doing that little test really wore me out! He told me that I'm losing muscle! He checked all areas and the muscles in my upper shoulders were basically not at all working! He told me that since this is going on with my body, that the things I do, makes my blood pressure either lower are higher! That made a lot of sence because I do push myself to much at times. And at my last visit, he had me take a breathing test to see how much my lungs are holding, and thats when I passed out and my blood pressure droped! I was pushing myself to far to do that test. So, he told me that I shouldn't be walking anymore because of how dangerous it could be for me! Plus, it pushes my body just to walk! So, with what he said and how he explained it to me....I need to start using my electric wheelchair! Bummer! I've been fighting for a long time to not use it! I still won't give up with this! He also said that the MS could be doing this to me. I don't know much at all about progressive ms and what it can/will do to my body. Even the dizziness is from my body being so weak. So, starting today, I will be using it. ggrr! I will not give up! :o)
When I got home...I got out of those hot clothes and put on my pj's! :o) I got in my bed to sit and rest. That felt good! My son had given me a card and a bouque of flowers! So sweet! Then, after my duaghter's class, she and my grandson came over too! She gave me a card and some potted roses! My grandson even gave me a card too! lol Too cute! :o) My daughter was feeling a lot better. She stayed and watched Big Brother with me and then had to leave.
I had such a great day yesterday! My family was all here with me and I love that! :o) Having my family all here means so much more to me then anything!
So....That was my day! Even though at the doctors it got a bit confusing for me, it still was a wonderful day! One that I won't forget! :o)
Thank you all for everything! Gods blessings to all of you!
30 comments:
h
Hi Lisa,
Was your Birthday yesterday?
I am confused as to what day it is/was.
Happy Birthday to you, belated.
Glad you ahd a good day aside from the dr. appts.
Love,
Donna
Lisa, I did a birthday tribute to you in my journal last night, hope you are having a great day, hope your daughter is feeling better, Love You Lisa XO
Awwwwwww Lisa you look so beautiful in that second picture holding Kayden, hope you have a great birthday, Hugs and Love Lisa XO
Hey girlfriend-
perhaps it is time to stop fighting...I know that the fighting makes you feel alive...but perhaps it is only weakening your abilities...please take it easy....I do worry about ya....
glad your special day was nice!!!
take care of you
-Ellie
Oh dear. Well, I am glad that you got to the doctor you like who could test your functions now. When I was having my worst bout with whatever I have got I had to be very careful not to over exert myself. I would try to walk a little ways and my strength would completely go, and I would have to sit down a rest a while before I could get up the strength to either get back or go forward. I did not know if I would ever pull out of it, but the main and most important thing was not ever pushing myself. So if the doctor says not to push yourself by walking I would use the wheel chair, because in time you might recover enough strength that walking would not be that hard. I found out that less was better. Pushing myself only put me into a worse condition. My body could not go into remission and start healing that way. I thought I would never get my strength back, but I did, very slowly. Exercise which meant pushing myself made me feel lilke I was going to die. I have always refused to take a treadmill test for that reason. I can't run hard. I read many books on chronic fatigue syndrome which said that pushing yourself does nt work. Can make you worse. So going up and down those stairs was probably beyond your limit, and each time you exert yourself too much, you may get worse, so please be very careful. This is not giving in, this is just trying to stay behind the disease not trying to go ahead of it. Iwill be thinking of you. Gerry
wow happy b day. I ope you start seeing some progress with the drs now
Happy Birthday! in case I didn't tell you before. Glad you had a good time shopping. Take care of yourself and do what the doctor says. Love and Prayers, Joni
At least this doctor is, as you say, starting to add things together and look more at the entirety of you. That test sounds similar to one given to my father (to aid in determining damage from his mini-strokes). I'm sorry to hear that you're losing muscle, glad your daughter was feeling better (how far along is she now? I'm losing track!), and that your birthday was good. Good shopping, too, yeah! :)
Hi Lisa, I'm sorry I didn't realize it was your Bday yesterday! It looks like you had a good one! Your cake was so cute...and all of your cards and flowers are great!!
Scary about the stairs!! What if you'd fallen? I'm glad you went to the Doc yesterday. I don't like to hear that your MS is progressing so fast though. Take care of yourself sweetie.
Hugs and love to you,
Pam xoxox
PS..Kayden's new haircut makes him look so grown up now!! Ready to be a big brother, isn't he? <smile>
I'm glad to hear you had such a wonderful birthday and day, you surely deserve it. I loved the cake, how cute. I can see you just can't help but smile when your grandson is near you, you are beaming!! You know, if you need the wheelchair by all means use it...it won't make you any less you.
Take care of yourself,
Lisa
http://journals.aol.com/wwfbison/life-on-a-bison-farm
Happy you had such a lovely day!!! :)
Sug
h
sounds like you had a perfect day! rose
I'm so glad you had a Happy Birthday, Lisa! I'm sorry I'm late saying it, but I do wish you the best year ever!
Hugs
jackie
http://journals.aol.com/siennastarr/Hopefloats/
Lisa, a belated Happy Birthday from me to you dear. Glad you had a wonderful day filed with lots of love from your family. Sorry you are having the muscle problems, for your safety dear, the wheelchair seems the right way to go, we don't need you falling dear. You are a strong woman with great determination with allyou are going through, very proud of you. Take care. Arlene (AJ)
I love you mom!
Thanks for coming to help me yesterday. I felt so much better after my nap.
sorry the doc appt didnt go too well. :(
Hope you had a great birthday!
I don't blame you a bit for going to your daughters, but I do agree with your dr. You have restrictions for your safety and stairs just are out of the question. Sorry to hear that though. I still do not get your alerts and I alsways forget my stupid side bar. I am so sorry I have missed so much. I get so darn busy :( Is there anything you need?
Hugs
Ang
Happy birthday! Please take it wasy and do not do to much!
Kelli
http://journals.aol.com/kamdghwmw/noonmom
So glad you had to family around you for your birthday. HAPPY BIRTHDAY sweetie.
Glad you had a happy birthday, honey. You really deserve one. I pray for you every day, knowing all you have to cope with. You're one courageous lady.
Hugs, and God bless.
Barb- http://journals.aol.com/barbpinion/FROMBARBSSPIRITUALJOURNALS
i'm SO glad you had a good birthday! That makes me happy!!! love the pics.....i bet you loved that cake. I hate to hear of how you have been feeling but so glad you were able to get to the doc.
XO lj
h
Happy Birthday to you:)
Deb
Wooohooo drive that sucker on rabbit! Linda
Love the pics. Happy Birthday. (((((((hugs)))))))
Love,
Cindy
Aw....dang Lisa. I knew a Lisa was having a b-day but I thought it was LisaJo and I asked her when it was (May). I couldn't figure out whose b-day it was. I sowry. Happy belated birthday! I would have sent something snail mail. Glad you had a great b-day!
Hugs,
D
http://journals.aol.com/heavenlybama/journey-to-success
Keep your spirits up. I know it is difficult at times, but that's all one can do. My relative has MS and she used to love to dance. For a very long time now, she just dances on the sofa and gets around the best she can. I don't know, but you sound like you keep on going just like her. She used to swim alot and then just pool exercises. I don' t know if she still can. Her husband has cared for her for years, bless his heart. Hoping you are feeling better for the long weekend. Take care and God Bless You.
h
Happy Birthday Late Lisa....(sorry)....There used to be a lady that I knew from our daughters and she had MS and she would feel exactly as you described...I wish you well....
Michele
Post a Comment