.....Just to let you know, nothing in this journal's entry is toward anyone in specific, I use it to write my feelings, and about my illnesess, and in hopes it might help someone else as I do.I do not pretend nor imatate to be someone I'm not. And if you might take an entry wrong and feel that it is about you, I'm sorry but It isn't, it just may seem to coincide with your own life. And if there is something in what I write that "offends" you, options; don't read, or realize that this IS real life, and learn more about it! I also know that what I write in MY journal, that NOT everyone will agree with me and I don't expect them to! God bless you!......
Good morning all. I hope you enjoyed our videos. :o)
I'm not sure where I left off. I guess I should have read my last entry before I started this one! :o) I'll just guess. :o)
I've been doing what my nurse had told me to do. I've been resting in bed (ggguuurrr!) and wearing my oxygen. I even put the longer tubes on it. I'm able to wear it and still able to walk around the whole house.....not upsatairs. So thats pretty cool! :o)
I just have to get up and walk. I do not believe in doing nothing but lay in bed! How will you get well? I've had a few doctors tell me to do that.....not me, in my opinion, you're just laying there and not helping your body at least try to heal or feel better. You'll lose muscle. Soooo, I get up and walk! Even when I'm here at the computer, I get up and walk for a few minutes. Thats one of the things I fight my doctors on! ;) <-----evil grin! lol
Before I was diagnosed and have the bad pains I have, I was an excercise-aholic! I'm just not one to just 'not' do anything. I belonged to 2 gyms! :o) Maybe that came because of the anerexic, I think it was.
Well...here we go again! As I said above...I have been doing! My doctor has yet to call my nurse or me! So, I'm still on the Lasix's 40 mg. 2 x dy! And right now, I really need either more Lasix or another water pill. Like Guido had mentioned. I really appreciate that Guido, I am going to ask about it when I can. I'm still 'not' going to the bathroom like I 'think' I should be. And because of that...I've gained another 5 pounds of water! I weighed myself yesterday! So, from on Thursday when my nurse weighed me and yesterday, Friday, I feel that thats way too much! Plus my lags, ankles and feet once again are swelling!!! <hudge sigh> And more added on my upper body....my trunk area is so swollen, I'm not able to sit up straight...meaning it's like I'm pregnant, not being able to sit up right! My daughter and I measured ourselves and I'm way bigger in that area then she is! And she's due April 14! I also am not able to lay on my back. I'm fighting to catch my breath! So, I lay on my sides.
This CHF is hard for me to understand. Even though I took care of my grandparents on my moms side (her parents), I'm just not getting it. I was able to take care and help them, and know what was going on. I could even read their files while they were in the hospital. Then when they'd come home, was able to know what they needed to do. I'm not grasping it when it comes to me. Oh well.
My case manager called me last night to see if I was ok. Since we are having all of this snow and being on a level one because of this blizzered warning going on. She calls all of her clients when the weather gets nasty. She asked if there would be someone here with me the whole weekend, and if I had all of the things I need, like enough of my medicines. I was fine with all of the things she had asked. Like having a flash light...etc. I also had the choise to be admitted in the hospital for the weekend. I said no, I'll be fine. And now as I'm tryping this...I should have said yes!!! Then that way I could get help sooner with this water build up! Well, guess what I'm going to do? :o) I'm going to call her back!
Can I be more stupid?! lol :o)
Well, I'm going to get the things done on here and then give her a call. I'll do my best to keep you updated.
God defend me from my friends; from my enemies I can defend myself.
8 comments:
Looks like winter wlll not go away for you with that snow. I hope you can get this water retention under control soon, I know it is a major pain. Have a decent weekend.
Phil
if you have time go check out the blizzard my Ohio city is going thru. We have it worse than any other Ohio city except Dayton. I had to miss work and much needed money last night. I posted with pics and stuff.
i have you in prayer.
lisa
hi lisa im praying daily and sending my and our love and BIG BIG HUGS . YES I KNOW THAT YOUR JOURNAL IS NOT TO HURT OR TO PRETEND YOUR SOMEONE ELES , I REALLY ENJOY READING YOUR JOURNAL AND I HOPE YOU KNOW IT DOES HELP ME TO UNDERSTAND AND TO LET ME KNOW YOUR DOING YOUR BEST , AND GOD IS WATCHING OVER US . , I HAVE FAMILY WITH WHAT YOU HAVE , AND ITS POISLBLE THAT WE MIGHT GET TOO , GOD PRAING WE DONT , IF I COULD I WOULD WISH IT TO GO AWAY FROM ALL AND THAT YOU WOULD BE HEAL AND ALL , I THINK AND PRAY FOR YOU ALL LOTS YOUR WELCOME , THANK YOU ALL , YOUR FAMILY IS SO SPEIAL AND LOVED , LISA I LOVE YOU MUCH AND REMBER YOU HAVE US ON YOUR SIDE AND THOSE WHO NEED US , YW , I WILL BE OFF LINE AFTER TUESDAY , THE ELEC WILL BE OFF , IM HOPING TO GET BACK ON LINE AS SOON AS I CAN , I WILL NOT FORGET TO PRAY AND THINK OF YOU ALL , TELL YOUR FAMILY HI AND TAKE CARE OF THEMSELFES AND THIER NEW FAMILY , AND TO TAKE CARE OF OUR FRIEND AND THANK YOU ALL SO MUCH , BIG BIG HUGS AND BEST WISHES , I WILL MISS WRITING AND MISS YOU ALL , THE TAGS AND PICTURES AND EVERYTHING IS WONDERFUL , AND NICE , LOVE THEM , THANKS FOR BEING THERE FOR US ALL , AND US FOR YOU , YOU NEED US TOO , SMILE BE HAPPY BE SAFT AND LAUGHT OFFEN , LISA CAN YOU SEND ME A EMAIL AND I BWILL TOO , THANKS , YOUR MY FRIEND AND WILL ALWAYS BE , I LOVES YOU , MAY GOD SENDED HIS ANGELS , TO HEAL , PRAY , AND WATCH OVER YOU ALL , AMAN , TC OF YOU YOUR DOING FINE KEEP WRITING , HUGS KISSES , PRAYERS DAILY , BEST WISHES , THANKS LISA , THANKS FRIENDS AND FAMILY , YOU ALL HAVE HELPED ME AND MY FAMILY MUCH , LOVE YOU , HANG IN THERE , GOD IS THERE ,
((((((((((((((((((((LISA)))))))))))))))))))))))))I am always praying for you.
Lisa,
Are you seriously telling me you're gaining 4 lb a DAY????
Lisa seeing all the terrible snow in your area. You are in my thoughts, concerned with your gaining so much weight so quickly. Please do call your nurse, if you still see more edema building.....if you can, be careful with the weather, so to the ER. Take care. Arlene
Stay warm in that blizzard. It's sure beautiful, but I'm sure it's not easy to live in.
If you are having that much trouble breathing, you need to call your Doc. They may need to increase your Lasix.
Pam
I hope you are having a good evening and hope you will be able to sleep well tonight. I worry about you Lisa. You are always in my prayers. Luv ya!
Allison
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