~Part two~

                            Good morning!

I hope that evryone is doing good this moring. I did get a few hours of sleep last night. It was like all of those nights that I didn't sleep, just hit me all at once and I just fell over asleep! I'm sure it was probably that I have had so much on my mind, and yesterday took most of it off. And a huge sigh of relief came over my mind, so to speak. And I'll take a few hours, it's better then none! :o)
It's the "now knowing" that is helping me, but now I also have alot racing around as well. Just the stuff the doctor told me about my future kind of won't stop echoing in my head. I just have to find a way now to try to stop it!

Thats is, if I can. Ok, as I said last night, yes, I do have ms. The test did prove it. I sat there and watched. I asked him questions about the squiggly lines on the monitor and what they meant and didn't mean. He pointed out everything to me. The test was suppose to take an hour and a half. It didn't. All he did was my left foot and my letf lower leg. The nurse before he came in, used a shock thingy on my left hand and arm up to just my elbow. She had to redo my hand 3 times because she couldn't get my pinkie finger to jump when she shocked me, even on the highest! Now that felt weird! Because I could actually feel on the inside of my hand the parts that weren't working right! Then the doctor came in. I sat up because my back was hurting while laying down.

The doctor didn't mind that I was sitting. The last time I had an EMG, I had to lay down and be still. Geesh! Different doctor then. He started on my foot. Again, the odd thing was, I didn't feel him putting that needle in me! And when I was asking about the lines on the monitor and when he was explaining them to me, he told me that when he moves the needle in and around my muscle, it makes those spikes! I looked down at my foot! I told him that I had no idea that he was moving that needle in my muslce! I did not feel it! And the place that he had the needle in at is a place that he told me was the most painful in the whole test!
He then just stuck it in my ankle, shin, calf and just all around my lower leg. I still didn't feel any of it. I had little bleeding spots all over my leg and foot.

After the test, thats when he was explaining that my nerves in my limbs were fine, the ones in my spine were not fine! The sheeths (sp) is damage. He showed me what was damaged and what wasn't. It was easy for me to see and understand. It all makes so much sense now to what I've been losing these past weeks and have been experiancing as well. I told him about them, and he agreed that this is why! And I also aske him if fibromyalgia was progressive? He said no! He said thats why he knew that I had something else wrong with me, and he was going to find it. I'm glad he did and also that he didn't mess around like my other doctor did! I've been going through this since 1994! I've been going through tests for ms since 1994! So, I'm pretty much advanced and he is doing his best to get me to this specialist in Cincinnatti asap! So I can be treated properly! And the doctor that let me go like this for all these years....gggrrr! I'm so mad!
I took with me a list of questions. I even wrote down all the questions that you guys have given me. And suggestions.
The water arobics? He was livid when I told him that my arthritis specialist wanted me to go to the Y and get a membership and take them there! Thats why I was on the fence about it because I didn't feel safe going there! He said NO, you will go to the hospital therapy and get water therapy there like a patient is suppose to! Now I feel much better about that. So now I am able to go and do them.
This is something that he brought up. He told me that I have to have a nurse come into my home to help me now. He then said, after that, for so long, ( didn't specify how long ) I would have to go into assisted living. And live there for the rest of my life. He said that he was sorry to tell me that because of my age, but if it was found years earlier, my body wouldn't be in this shape, and I wouldn't have to live like that. I just thought to myself that maybe there was some way I could stop that somehow. But, I can't come up with anything right now. Because I'm not really to be alone, and there isn't anyone that can be here all the time with me. I don't have family that doesn't work.
He didn't give me any medicines, he's leaving that up to the ms specialist. And the pain clinic. He told me to do the best that I can to be as comfortable as I can. I'm trying. I can only do what I can with what I have. This is now new to me, so I have to learn more about it.
So, I found out so much yesterday. Alot more then I thought I would, and I'm glad I did. But, now I have to put what he told me to do into motion. There's so much I need. How in the world do I get half of the things? I have a list of things that I need to get to help my cognative problems, health, safty at home, and myself. Where do I start? What is a palm pilot? I think thats what he said? To help me write things down. Oh well.
Well...I'm going to go and I just need to look some things up. :o)

Thank you for your emails and ecards and comments! :o) Gods blessings to all of you! :o)

I feel like I've left something out. :o)

Tags: MS, fibromyalgia, HELP!