Meet Fibromyalgia
Hi..
My name is Fibromyalgia
I'm an Invisible Chronic Illness.
I am now velcroed to you for life.
Others around you can't see me or hear me
But YOUR body feels me.
I can attack you anywhere & anyhow I please.
I can cause severe pain
Or, if I'm in a good mood..
I can just cause you to ache all over.
Remember when you & Energy ran around together & had fun?
I took Energy from you & gave you Exhaustion.
Try to have fun now!
I also took Good Sleep from you..
And in it's place, gave you Brain Fog.
I can make you tremble internally..
Make you feel cold or hot when everyone else feels normal.
Oh yeah, I can make you feel anxious or depressed, too.
If you have something planned..
or are looking forward to a great day,
I can take that away, too.
You didn't ask for me.
I chose you for various reasons:
That virus you had that you never recovered from,
Or that car accident,
Or maybe it was the years of abuse and trauma.
Well, anyway, I'm here to stay!
I hear you're going to see a doctor who can get rid of me.
I'm rolling on the floor, laughing.
Just try!
You will have to go to many, many doctors
Until you find one who can help you effectively.
You will be put on pain pills, sleeping pills, energy pills,
Told you are suffering from anxiety or depression,
Given a TENS unit, get massaged..
Told if you sleep and exercise properly I will go away,
Told to think positively
Poked, prodded, and MOST OF ALL..
Not taken seriously as you feel when you cry to the doctor..
How debilitating life is every day.
Your family, friends & coworkers will all listen to you
Until they just get tired of hearing about how I make you feel,
And that I'm a debilitating disease.
Some of them will say things like "Oh, you are just having a bad day"
Or "Well, remember, you can't do the things you used to do 20 YEARS ago"
Not hearing that you said 20 DAYS ago.
Some will just start talking behind your back,
While you slowly feel that you are losing your dignity
Trying to make them understand.
Especially when you are in the middle of a conversation with a " Normal "
person..
And can't remember what you were going to say next!
In closing..
(I was hoping that I kept this part a secret, but I guess you already found
out)..
The ONLY place you will get any support and understanding
in dealing with me is with OTHER PEOPLE WITH FIBROMYALGIA
except the minority of a few.
.
Sincerely, Your Invisible Chronic Illness.
12 comments:
Awww mom!! Where did ya get this? This is soooo true!!! It is what you try to tell those people out there and they never listen. You should print this out and frame it and put it in the house!!
Love ya
good one
Well it won't beet me as a listener, so I am going to kick it's butt ,for saying that LOL!! I will listen all the more .LOL!! It is a very good way of letting people know Lisa what this illness is all about..Thanx for sharing this with us.Like many who are suffering the big C we have to keep hoping and praying we can send this terrible foreign body away for good.You keep up your spirit girl.Take Care God Bless Kath Astorisand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES
Ahhh... now I get it. I don't even have it and I get it. ;).
Am with ya, baby.
Lisa...
Great post. I SOOOO relate to this, sadly. Did you write it?
Nancy
Aye, the invisible illness...
My former mother in law has it and when I talked to her the other day hers was really acting up!
Kelli
http://journals.aol.com/kamdghwmw/noonmom
Hi Lisa,
Very imformative.
I am sorry you have this.
Love,
Donna
And then there is that damned Fibromyalgia, too. I don't know what all is responsible for doing this to you, this enemy, too. But what a poem. It says it all. Thanks for posting such a powerful statement about chronic illness. I think it covers just about everything. Gerry
the best.
Lisa,
Boy, that was good! You boldly stated things like they are! Thank God, I don't have Fibormyalgia on top of all my other problems. I wouldn't wish it on a skunk (or my worst enemy.) I'd like to support all who suffer from this ailment! Merry
I loved this entry Lisa You tell it as it is thank you.
love and hugs
Katie
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