Tuesday, October 31, 2006
The best poem in the world!
I was shocked, confused, bewildered
as I entered Heaven's door,
Not by the beauty of it all,
by the lights or its decor.
But it was the folks in Heaven
who made me stare and gasp--
the thieves, the liars, the sinners,
the boozers,and the trash.
There stood the kid from seventh grade
who swiped my money twice.
Next to him was my old neighbor
who never said anything nice.
Herb, who I always thought
would rot away in hell,
was sitting pretty on cloud nine,
looking very well.
I nudged Jesus, "What's the deal?
I would love to hear Your take.
How'd all these sinners get up here?
Was it God's mistake?.
And why's everyone so quiet,
Please Give me a clue."
"Hush, child," said He "They're all in shock.
No one thought that they'd see you."
Judge NOT.
~My present~
Ok...I think I'm done now of freaking out because of my alerts aren't working! So, if you don't get a responce from me when you comment, I'm still not getting them. :o) aarrgghh! I wonder what aol is up to now?! Geesh! :o) Or, if you don't get a comment from me, I didn't get an alert as well.
Well....tonights the night...finally! Yay! :o) My sleep test! :o) It always feels weird to sleep some place else other then my own bed, when it's just me. Now, if someone else were to go with me, (no one can) then I would feel better. :o) Ok, I'm a wuss...I'll admit it! lol :o) But...I am taking my pillow and my teddy bear! Oh yess, I have to! Can't leave home without them! LOL :o) Kidding! (but not my teddy bear) :o)
I was watching the dicovery channel last night. They were talking about all the different kinds of religions and when they started. It was interesting, and I found it to be...I can't even come up with a word for it. There were so many before Christianity, and they called all the religions, even Christianity, cults! I was not at all expecting to hear that one! They said because Jesus had people follow Him! Just like Cults! I guess the Romans started that. I just found it interesting....thats all. There were a lot more to the show, but just that part stuck out to me.
Moving on......
I also found that last night and the night before, I went to bed earlier then usual, and not becuase of the time change. What I think it is...my body is so worn out by the pain, I get very tired and I just lay down, and out I go! I've been going to bed way before my grandson does! Thats early! Like around 6:00-6:30! The pain in my back is now all the way back to the way it originally was. Good Grief! I have to sit in funny little ways to get comfortable. :o) My grandson come to the side of my bed and wants to sit with me and watch t.v.! :o) So my husband will sit him up with me, I give him my calculater, to let him think he has the t.v. controls..lol...and we sit together watching t.v.! :o) I love it! :o) Last night, I was changing channels behind his back, so he didn't see I had the controls, and heseen America's Funniest Video's, and it had animals on it...and he wanted to watch that...so thats what we watched! LOL Too cute...he clapped whe the audiance clapped and laughed out laud at the animals being funny! LOL He's a character! LOL :o) When it was over, then he wanted down! :o) So, he went in the living room to watch tv. with his daddy and my son! :o) My daughter aced both of her tests last night! Wooo Hooo! :o) I'm so proud of her! :o)
I'm really proud of my family! They are all my present! :o) They are all a gift from God to me! :o) And I thank Him! :o) I also thank God for all of my friends as well! :o) So much good has happened to me and my family! And I thank The Lord for that! :o)
Thank you all for your emails and comments! God bless all of you! :o)
Monday, October 30, 2006
Just thoughts
My experiences of Spirit opened my eyes to many
possibilities of what could take place here.
It opened my eyes to the possibilities that are available to
everyone who chooses the higher path, who chooses the Soul.
All that has ever been available through Spirit to mankind
is available right now to everyone. We are never separate
from our divine nature.
We can pretend otherwise, but we can claim our spiritual
heritage at any moment and turn our feet toward home.
Miracles are instantaneous. They cannot be summoned, but come of themselves, usually at unlikely moments to those who least expect them.
-- Katherine Anne Porter
I cannot give you the formula for success, but I can give you the formula for failure -- try to please everybody.
--Herbert Bayard Swope
Going through the opening
Contracting Before Expanding
Sometimes our lives contract before they expand. We may be working hard on ourselves spiritually, doing good in the world, following our dreams, and wondering why we are still facing constrictions of all kinds-financial, emotional, physical. Perhaps we even feel as if we've lost our spirituality and are stuck in a dark room with no windows. We may be confused and discouraged by what appears to be a lack of progress. But sometimes this is the way things work. Like a caterpillar that confines itself to a tiny cocoon before it grows wings and flies, we are experiencing the darkness before the dawn.
When things feel tight, it's easy to panic or want to act in some way to ease the feeling of constriction. We might also spin our wheels mentally, trying to understand why things are the way they are. However, there is nothing we need to do at this time other than to be patient and persevering. We can cling to the awareness that we are processing the shift from one stage to another, and the more we surrender to the experience, the more quickly we will move through the tightness into the opening on the other side. Just like a baby making its way down the birth canal, we may feel squeezed and pushed and very uncomfortable, but if we remember that we are on our way to being born into a new reality, we will find the strength to carry on.
Even as we endure the contractions, we can find peace within ourselves if we remember to trust the universe. We can look to the natural world for inspiration as we see that all beings surrender to the process of being born. In that surrender, and in the center of our own hearts, is a willingness to trust in the unknown as we make our way through the opening.
Nothing much
Wow....today has really turned out to be a nice sunny warm day! :o)
I asked my physical therapist about the epidural, and she said that I might be the type that the doctor will have to keep trying different things with until he finds the right medicine. Well, ok. I wait. :o) The massage was painful, but thats nothing new.
I was able to go back to bed around 9:00 this morning. My home health aid came as well today. :o) Since I didn't know how long I'd be asleep, I asked my daughter if she was going to be here or not. She had some work to do for class today, so she'd be here. :o) I couldn't believe how long I slept! I woke up when it was time for her to leave! :o) She leaves at 2:30! :o) Plus, While I was out...My daughter has an interview with a doctor's office in one of the newer buildings this week! YAY! :o) I'm so proud of her! :o) I hope and pray that she gets it! :o)
I'm very sad to see so much hatred going on in j-land. I just don't understand it at all. These journals belong to us for us to write in and to put our feelings in and what we want in them. It makes no sense to me why all of the sudden the nastyness and meaness of some. I know I've had my share! And words DO hurt...just be nice.
P.S. I have posted above that you CAN snag any graphic off this journal! :o)
~Life~
What I write about in this journal really helps me to get a lot off my chest, plus I also try to find information to help out others as well. And, I hope I do. :o) I've been up since 11:30! It's now 5:20! Wow! What I do write, I hope I don't upset anyone as well. I have no intentions of doing so. Sometimes the "fibro fog" hits at odd times and the words get lost! lol
My physical therapist will be here this morning. I'll ask her about the epidural. My eyes are getting a lot better....their still dialated but I'm not seeing double and i'm not seeing blurry. :o) Whew! That was weird! lol Yesterday, I was standing with my walker, talking to my husband, and all of the sudden something happened from my back, and went to the left and down to my hip and my leg! what ever it was made me jolt! I actually had to stand bent towards the left for a mintute to get a grip so I could sit down. I have no idea what had happened! My husband seen what happened...well...my reactions to what happened! Wasn't good at all! Sort of like an electircal shock that went through me! Starting from my spine! I went and sat in my bed and I still had to lean to my left! It was still hurting for a long time. I'll ask my therapist about that as well.
Other then that...I had all of the usual pains. Tomorrow is my sleep test! YAY finally! :o) But, I'm going to miss my grandson going out trick or treating. I asked my daughter to take some video of him and of course pictures! :o) Gota' have them! :o) I really love having my kids and my grandson living here still/again! :o) I love the feel of my family! :o) Like when they were growing up, at the other house we had before this one, that house was the house to be at in our neighborhood! I loved it! It was big enough...and they both would have kids spend the night, and little parties! lol :o) I had fun with them! I have a lot of their friends and stuff we used to do on video and of course pictures! lol :o) I was also them mom that went around and took the kids to and from school, and was both of my kids home room mothers...now that was a blast! I got to go to alot of places with them! :o) I wouldn't change a thing! :o) I've seen and heard other mothers say that they liked having children over to their house, and then turn around and say that they could only handle it for maybe an hour! Sad....missing out on so much! Don't say what you don't mean.
Another sad thing is, there are people out there that think that what they read in your journal is about them! Don't they realize you could possible know more people then them? How about that? Thats sad. I ran across one this morning that was from the uk, and it saddened me to think that he thought that! Now thats bad when someone starts to think such a thing. And I'm sorry. Oh...it's 6:00! I better get off of here! LOL It takes me so long to write in my journal anymore! Geesh! LOL
Thank you for the nice comments and emails! God does bless you all! :o)
Sunday, October 29, 2006
To be...or not to be...
Or, what if? Those are some hard questions to answer. :o) Or, why? Wouldn't some of you like to know the answers to some of these questions? I would. :o) To some degree that is. Like...why do certain people act the way they do? I don't know. Especially when they are down right mean. Or, what if? Just weird thoughts this morning. :o) I got up way too early! lol :o)Can ya' tell?! :o)
I've decided to do something today. I'm going to take a few pictures of the inside of my house. And of my armoier. Then I'm going to post them. And who know, maybe one of me as well. I'm not able to bend or anything like that, and my kids are gone for the day as well, it's just my husband and I. So, I'm not able to "pick thing up," or clean. (believe me i wish I could). It drives me nuts that I can't.
I just realized last night, I have that sleep test on beggers night! I won't be able to pass out candy like I did last year, or get to see my grandson. But, I'll have someone get pictures for me. :o) He's going to be a teddy bear! LOL :o) Too cute! With big blue eyes! :o) I can't wait to see that! :o)
Since the clocks are turned back, of course my system is screwed up! lol Geesh...everytime we have to do this, it usually takes about a week to get back to "my" normal! lol :o) So....that means I'm going to be "off" more then I usually am! lol I was able to get my bedding changed yesterday! YAY! :o) Oh it felt so good! :o) I know...I'm weird! :o) But its done! :o)
Well, I do know how bad my back is once again. I walked out to the kitchen with my cane, to talk to my husband. I got out there fine, but by the time I started to talk, my back was in so my pain, it felt as if I was going to "fold" in half! Meaning, my top half of my bady was so weak, and was going to just going to bend from my waist and droop all the way to my bottom half of my body...if that makes any sense? :o( I started shaking I think because I was really getting weak. I sat down for a bit so I could make to back to my room. I told my husband what was going on, and what I needed to do. I made it back to my room in time. Whew, that was a close one! Then I rested a bit in my bed. I fel stronger and then I got my walker and went back out to the kitchen again. This time I had more stength. The walker does help with that. Plus if I need to sit in a hurry, I can sit on it. :o) I just was feeling very good at all, so I came back to my room. I sat in bed again. My back was in so much pain. I just don't understand why the epideral went away so fast. But, I am very grateful for the time that I did have with out all of thay nasty pain. :o) But, it is baffling me as to why this is still going on with these injections. Maybe I'm a person that can't take them. Who knows! :o) I'll find out in two weeks! :o) I suppose this is all for now!
I really want to thank all of you for your emails and comments! :o) God does bless all of you! :o)
Saturday, October 28, 2006
~A BIG Thank you!~
I really want to thank one of my friends for something that was a total surprise to me! :o) Totally blew my mind! :o) Ang, and I were emailing back and forth yesterday, and were talking about a different kind of massage. Sounded so nice. :o) She asked me if she could come, pick me up, take me there, and then bring me back home, would I be interested? Well, yes. :o) I assumed I needed to talke to my husband about the price to see if I could afford it. Well...it's a treat! The only people that knows me, knows how much this means to me! My children my best friend and my husband! They all know what had happened the last time someone said that they were going to do something to help me.....well, they didn't, it was a pipe dream. And it hurt me to no end. I am so excited! Thank you Ang! :o) God blesses all of you! :o)
Tick-Tock-Tick-Tock
Good morning! I do hope everyone is doing alright this morning! :o) I put a link to The Giving Tree on my side bar! :o) I love it! Truly amazing! :o)
Yesterday, I rested as much as I could. How I'm feeling now, I'll have to do more today. gggrr! My bedding really needs to be changed. I'll asked someone to see if they can help me. I know my grandson will help me! He always does! LOL :o) Too cute! :o) I was taking a nap yesterday, and I was woken up by this little tiny hand.....that SMACKED me 3 times on my left arm! LOL :o) Here he had come in my room and wanted grandma up! And up I was! LOL That boy is just so funny! :o) I woke up to his cute little blue eyes smiling at me! He's gettin so big now, he can almost crawl into my bed! I reach down and he grabbed onto my arms and up he came! :o) My daughter came in and was laughing...she asked me what he had done, and I told her! lol I told her that it was alright! lol :o) She started to laugh because I guess while I was sleeping, he kept coming in to try and get me up! Well that time he succesfully did it! LOL :o)
My daughter and her boyfriend and my grandson are going to Bellbrook to day for the night. She's going to go visit her dad, and go to a Halloween costume party. :o) Sounds like fun to me! :o) She has a class this morning as well, then she will leave after that. :o) I don't know what she's going to be, but I'm sure I'll have pictures to show! :o)
Well...I got up early this morning...4:00. I still got 5 hours! Yesss! :o) Pretty good! :o) What woke my up was my back pain. :o( It's back! All of it! I've got to figure this out! I just don't understand. I do exactly what I'm told to do. And it still sisn't last. But, just that little bit of time I did have was great! :o) I'm very gratefull for that! :o) I've learned to have a lot of patience through all of this. You have to...just to roll with the flow of things that you have no control over. Again....I will wait. I know I'm being looked after. :o) I'm in God's hands right now! :o)
While I was getting out of bed, I could feel and hear my vertabra's "crunching" together. the muscles around the spine were cramping up into these little ball type cramps. which made my upper arms go tight on me and harder to use them to grab aholdof my hand rail. I got myself sat up, and sat there for a minute to get my wits about me. Then thats when I could feel everything was back in pain. my hips arms thighs...everything! So....I'll wait again. :o) Just ride this out! :o) I lnow that I'm not doing anything at all today. :o) No way! lol :o) Well...I guess thats all for now! :o)
Friday, October 27, 2006
I've been tagged again! :o)
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
1. Grab the nearest book.
2. Open the book to page 123.
3. Find the fifth sentence.
4. Post the text of the next 4 sentences on your Blog along with these instructions.
5. Don't you dare dig for that "cool" or "intellectual" book in your closet I know that is what you were thinking!
6. Tag 4 or 5 people
- - - - - - - - - - - - - - - - - -
"And it shall be on Aaron when he ministers; and it's tinkling may be heard when he enters and leaves the Holy place before the Lord, that he may not die.
From: New American Standard Bible Reference Edition.
I tagged:
Donna
Merry
Mandy
Lisa Jo
When I say.....
I'm not shouting "I'm clean livin'."
I'm whispering "I was lost,
Now I'm found and forgiven."
When I say... "I am a Christian"
I don't speak of this with pride.
I'm confessing that I stumble
and need Christ to be my guide.
When I say... "I am a Christian"
I'm not trying to be strong.
I'm professing that I'm weak
And need His strength to carry on.
When I say... "I am a Christian"
I'm not bragging of success.
I'm admitting I have failed
And need God to clean my mess.
When I say... "I am a Christian"
I'm not claiming to be perfect,
My flaws are far too visible
But, God believes I am worth it.
When I say... "I am a Christian"
I still feel the sting of pain.
I have my share of heartaches
So I call upon His name.
When I say... "I am a Christian"
I'm not holier than thou,
I'm just a simple sinner
Who received God's good grace, somehow!
TGIF
It's raining once again here........what else is new! lol :o) I want to say something thats very important. Please everyone.....Jackie, Hope floats really needs all of our prayers as she is in California where the fire storms are and they are getting close to her!
And....I misunderstood in my last entry. I had said that 2 of my friends have come up with this idea with The Giving Tree...sorry about that..(a blonde moment) it was just 1 of them! :o) Geesh....this morning is just not starting out very well! LOL :o) Goes to show ya' what my day is going to be like! lol But, LJ and I are backing Ang 100%! :o) You go girl! Wooo Hooo! :o)
Yesterday my grandson turned 17 months! Wow! Whew! Just can't believe how fast he's growing! :o) And boy he's learning so much and quick too! :o) He makes me laugh so hard! He reminds me of my daughter when she was that age! LOL Too funny! :o) He doesn't walk any more....he RUNS now! LOL :o)
Last night, my legs kept me awake. I got up at 11:00. Nothing that I tried worked. My husband was still up, and I asked him if he could rub out my calves. My calves were so tight you could see the "balls" of muslces bulging out! He came in my room, and I gave him some lotion. My right calve was the worse. Plus, my right leg is the one thats more numb as well. He started to rub it out, and I asked him to rub a lot harder then that, because I couldn't feel it at all! He was afraid of hurting the muscle. I told him the my physical therapist does it harder....so her did. Finally he did it and boy it felt so good and it hurt at the same time, it hurt, but a good hurt because I knew it would feel a lot better afterwards. He didn't like the idea that to get me to actually feel the massage, you have to rub so hard. He said that it's damaging the muscles by doing that. I don't know, all I know is that it feels so much better when it's done. And boy it did when he was done with both of them. :o) I was able to get back to sleep! :o)
This morning, my back is different. I do feel a big differance! The numbness has worn off. I can now feel my back. Even my spine. Now, I'm not totally sure what this means. Yes, I do have pain again, but it's not as bad as I was having. But, I can really feel the pain in the muslces in my back just like I was before. That was like a swift kick in the butt when I was trying to get out of bed! Ouchie! I just don't know whats going on. But, at least I did have a few days with out all of that pain! :o) That was great! :o) Not complaining! Very thankful and grateful! :o) So...I'll just do some more rest again today, and see if that helps. :o) It's not going to hurt! lol :o) I aso urinated myself a lot this morning. :o( So...that makes me think if that has anything to do with the injections and the pains I have. I'm not sure. I do know thats pretty embarresing. But, if I having it happen to me because of this horrid illness, then I'm going to lay it out here on the line to maybe help someone else. :o) I still have my dignity! :o) By the way, if anyone has any questions at all for me....feel free to email me and ask! I'm more then welcome to answer! :o)
Thank all of you for your emails and comments! God does bless all of you! :o)
~The Giving Tree~
Click on the above graphic, and it will take you to a new journal! Two very dear friends of mine, came up with this wonderful idea! The Giving Tree! It is explained in the journal how it works, and it's for ALL J-Landers! :o) Even across the pond! :o) I know I might have something that I could donate! :o) Everyone and anyone can be involved! :o) I'm just so excited about this! :o)
God does bless all of you!
Thursday, October 26, 2006
My alerts
Just letting everyone know that my comment alerts and journal alerts don't seem to be working today. I have no idea why.... So, if you don't hear from me, thats why. :o) So sorry. :o)
Lisa
words of wisdom
The Gift of Bringing Light into the Life of Another
Whenever we can remember that we would rather smile about what life brings us than suffer over it -- that our natural preference is happiness, not hurtfulness -- then in such moments of being mindful of what we love most . . . can't we also strive to remember how much better it is, for everyone, to brighten the life of another rather than to darken it in our forgetfulness?
Our faults irritate us most when we see them in others.
--Pennsylvania Dutch Proverb
Loving Each Day:
You must find the truth within yourself.
You move into and through all the levels of consciousness.
No matter what, you don't stop; you continue the
progression. If you keep moving, you cannot be bound by
illusion. As soon as you stop and say, "This is it," the
illusions will be there to put you in bondage.
Keep going - always.
Drum roll please......here goes!......
Ok...The pain clinic called me and asked if I could come in earlier then my appointment was for. Here I am sitting in much pain...so, I said, " Well, sure!" :o) Very happy about that one! I went done there and got in as soon as I got there...YAY! :o) ;Heray for the Flag hold it high...; ....ok back on track now....! I told the doctor about the injections the last time he gave me. ouchie...just thinking about them makes me sick to my stomach! Oh stop the room spins! uuggghh! ...Ok..well, then he says then maybe your body is one that can't take those type of injections! I turned my head to him quickly and said, "What? you mean there's different kinds?" Yikes! He said yes there is!!! Oh Good Grief! I though about all sorts of things then....all running though my little mind! :o) eeeekkk! No way! So, I decided to sit there and hear him out! Whew! :o) He asked me what kind of pain killers I was on, and I told him Vicodine, but they don't work (obviously). And I told him that. I said that they could be flushed and he could try another pain pill, and I'd be willing to try it. No...no such luck. I felt my shoulders droop. <sigh> Then he asked me about having an epideral! I told him that I've never had one! He said never? Even when I had my children....I said never, even when I had my children! I had them both natural! I told him that I drove there myself, and if need be, I'd have to call someone to come and get me! So...Thats what he gave me....an epideral. This time...I actually got injections in my spine itself! It didn't hurt like getting them in the muscle. Whew! It also took a lot longer too!
So...he put this little table around for me to lean on with a pillow on it. I said, Ummm, Now What is this for?" He laughed and told me to just hold on! lol :o) On the inside...I was thinking,,,Oh, Ok...and why would I have to do that? But on the out side I said, "Oh, ok...thanks! With a big cheesy smile! :o) So, thats what I did, I hung on for dear life! No knowing what to expect! LOL The suddenly...I knew! YYEEOOUUCCHHIIEE!!! Those needles he uses look like something you'd see off of an old creepy movie...no lie! Plus...he even pushes the needle in deeper then my skin! And what can I do...but sit there! I wore my tie died t-shirt this time, because I really bleed a lot when I get injections, and this time, I would ruin any shirts this way! LOL :o) Quick thinkin' huh!? I thought so too! ;O) LOL Well....I know that he gave me 4 injections in my spine...I know he gave me more, but I couldn't feel how many more...guess thats a good thing! Not feeling it...being numb.....injections working....yay! :o) Get what I'm saying? :o) YAY! :o)
After he was done, I sat up right, and he came around and told me that I wasn't to take the bandaids off for 2 days!! What? Why? Because of spinal fluids might leak out! Ok..I'm making myself sick to my stomach! eewww! I just said, "Ok." I have to go back again in 2 weeks! My spine does feel very different. It's my spine thats usually giving me the most pain.
I got home, and the soup was done...YAY! I timed that one perfect! :o) It really hit the spot! My grandson had 2 bowls of it too! lol He like grandma's cooking! He's just too cute! :o)
After eating, I came in here and sat in bed to rest. I caould feel the medicine start to kick in a bit. :o) I had to also catch up on my favorite show, Ghost Hunters! It was pretty good last night! :o) My son came in here to watch it with me! :o) I love it when he does that. :o)My physical therapist came this morning and scard me to death! :o) Geesh! I have her to just come in the door, because its easier on me. She was quiter then usual...I turned and looked,, and there in the darkness she stood! LOL I jumped with a little scream....and she laughed! LOL It was funny! LOL :o) My new medincine has been working, because my muscles aren't so balled up and my joints arn't so swollen! So a great big .....YAY......!!! :o) I told her about my eyes, and she said that it will go away, it will adjust in my system soon.....Whew...how soon!? LOL Ok....They're dilated, and I'm seeing a burry double vision! LOL So, I'm seeing two of everything and they are blurred! LOL Thats funny! lol :o) Maybe I'm having a bit too much fun with this!!! LOL :o)
Well.....I do need to end this chapter now! :o)
Thankyou all for your emails and your comments! God does bless all of you! :o)
Wednesday, October 25, 2006
Nothing in paticular
Today is a much better day. Physically it's not. I go to the pain clinic today, which I'm hoping that it will help in some way or another. Just don't want anymore injections.
I'm making more vegetable soup today. Just sounded good on a day like today...cold! I woke up this morning with the shakes once again. Oh boy. Not a fun time at all. Hard to walk and do anything when that happens. Then when my eyes are dilalated and blurry, and at times I'm seeing double...well thats not helping either. ....This too shall pass! My daughter has classes today. So she's been doing a lot of studying.
I hope that every one is doing good today. With this odd weather making people in more pain then they should be in at this time of year.
I posted in my last entry, the site where I got those letters from. That web site has a lot of information on it for fibromyalgia. My home health aid is here right now. I should go for now.
Thank all of you for your eamils and you comments! God does bless all of you!
Tuesday, October 24, 2006
Thoughts
Why is it that no matter what you do or even say....there are always someone out there that will always have to step on you to feel that they need to just to make themselves feel better? Or even why are there people that accuse you of doing what they themselves are doing when it's not the truth? I see that to me...telling the truth is so much easier to remember the telling lies! Because you have to keep telling a lie and remember who you've lied to! It makes no sense to me. I do not consume myself with anything in my life, except for my life and my family and friends. How hard is it to get it?
I have enough on my plate that I deal with, and I don't want anymore. If I did...I know where to look! That simple! I do nothing but put the truth out in my journal! What you see is what you get! I can not get too upset because of the effects it leaves on my body. So...I'm not going to let it happen. Have your fun and your laugh at my expense. Just please, leave me out of it.
I will continue to say this, because this is how I do feel! Thank you all for your emails and comments! God does bless all of you! :o)
I've been tagged again! LOL
I've been tagged by Bethjunebug. I've seen this going around and have read some very interesting entries. So.....here goes............
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - 1. Grab the nearest book.
2. Open the book to page 123.
3. Find the fifth sentence.
4. Post the text of the next 4 sentences on your Blog along with these instructions.
5. Don't you dare dig for that "cool" or "intellectual" book in your closet I know that is what you were thinking!
6. Tag 4 or 5 people
- - - - - - - - - - - - - - - - - -
OK, HERE'S MINE: Children's Devotional Bible
2 Kings 2:1 But Elisha said, "As the Lord lives, and as you live, I won't leave you." So they went down to Bethel. A group of the prophets at Bethel came to Elisha. They said to him, "Do you know the Lord wikk take your master away from you today?" Elisha said, "Stay here, because the Lord has sent me to Jericho."
***A letter to "Fibromities"***
I am a spouse of someone with fibro.........
by the (late) Donna Euteneier from Fibrohugs.com
A lot of times we as family members, friends, and loved ones are supposed to understand, accept and be sympathetic to someone who has an illness..... and I agree with this statement, but only when we are given information, understanding and support ourselves.
Fibro does not just affect the person who has it.... fibro affects the whole family..... it steals away all of our lives. I have watched, broken hearted, as Ken has packed away his dreams and hopes for the future.... but along with those dreams and hopes were mine also. Just as you have come to realize that your life has changed forever so must we....... and we have to be allowed to morn that loss also.
We become angry and depressed just as you do...... we struggle with KNOWING that you are sick, to being angry that you are sick....... not at you but at the illness. Then we become angry at ourselves for feeling selfish and thinking of ourselves.... thinking of the added stress on our lives... the added responsibility.... the added guilt.
We have gone from a 50% partnership in this marriage, this family, this life, to sometimes feeling like I'm carrying the whole weight of it alone. I have to remember that my spouse is sick..... that the illness has taken that away and sometimes I'm lonely, scared, and extremely sad at the loss of what was....... but I also know in my heart that I love my husband more than life itself and TOGETHER we will find our way.
You have to talk to us.... you have to let us know how you're feeling, what you're feeling, and how it's affecting your day........ your life. If you don't talk to us we will never understand how you are feeling and we will assume that everything is as it should be.... thus expect from you what we have always expected.
I need to be able to say it's "okay" when your angry and hurting........ but it has to be "okay" when I am also. We both have to stop and look at what's going on in our lives at the time....... just as you get angry and lash out sometimes...... so do we.
So will we really ever understand what you're going through? ......No! Will you ever really understand what we are going through? ......No! But if each of us gives each other the time, love, and patience to find our own way in dealing with and accepting what fibro has taken from us, I think our relationships may be a lot better.
I hope with your challenge that you wanted to hear the truth...... and that is what I offer in this.... how we feel as Spouses.
^^^Letter to "normals"^^^
Hello Family, Friends, and Anyone Wishing to Know Me,
Allow me to begin by thanking you for taking the time out of your day to spend some time with me and get to know me better. A person’s time is their most valuable asset and yours is appreciated.
I want to talk to you about Fibromyalgia (FM) and Chronic Myofascial Pain Syndrome (MPS). Many have never heard of these conditions and for those who have, many are misinformed. And because of this judgments are made that may not be correct… So I ask you to keep an open mind as I try to explain who I am and how FM/MPS has assaulted not only my life but those whom I love as well.
You see, I suffer from a disease that you cannot see; a disease that there is no cure for and that keeps the medical community baffled at how to treat and battle this demon, who’s attacks are relentless. My pain works silently, stealing my joy and replacing it with tears. On the outside we look alike you and I; you wont see my scars as you would a person who, say, had suffered a car accident. You wont see my pain in the way you would a person undergoing chemo for cancer; however, my pain is just as real and just as debilitating. And in many ways my pain may be more destructive because people can’t see it and do not understand....
Please don’t get angry at my seemingly lack of interest in doing things; I punish myself enough I assure you. My tears are shed many times when no one is around. My embarrassment is covered by a joke or laughter, but inside I want to die....
Most of my "friends" are gone; even members of my own family have abandoned me. I have been accused of "playing games" for another’s sympathy. I have been called unreliable because I am forced to cancel plans I made at the last minute because the burning and pain in my legs or arms is so intense I cannot put my clothes on and I am left in my tears as I miss out on yet another activity I used to love and once participated in with enthusiasm.
I feel like a child at times... Just the other day I put the sour cream I bought at the store in the pantry, onthe shelf, instead of in the refrigerator; by the time I noticed it, it had spoiled. When I talk to people, many times I lose my train of thought in mid sentence or forget the simplest word needed to explain or describe something. Please try to understand how it feels to have another go behind me in my home to make sure the stove is off after I cook an occasional meal. Please try to understand how it feels to “lose” the laundry, only to find it in the stove instead of the dryer. As I try to maintain my dignity the Demon assaults me at every turn. Please try to understand….
Sleep, when I do get some, is restless and I wake often because of the pain the sheets have on my legs or because I twitch uncontrollably. I walk through many of my days in a daze with the Fibro-fog laughing at me as I stumble and grasp for clarity.
And just because I can do a thing one day, that doesn’t mean I will be able to do the same thing the next day or next week. I may be able to take that walk after dinner on a warm July evening; the next day or even the in the next hour I may not be able to walk to the fridge to get a cold drink because my muscles have begun to cramp and lock up or spasm uncontrollably. And there are those who say “but you did that yesterday!” “What is your problem today?” The hurt I experience at those words scars me so deeply that I have let my family down again; and still they don’t understand….
On a brighter side I want you to know that I still have my sense of humor. If you take the time to spend with me you will see that. I love to tell that joke to make another’s face light up and smile at my wit. I love my kids and grandbabies and shine when they give me my hugs or ask me to fix their favorite toy. I am fun to be with if you will spend the time with me on my own playing field; is this too much to ask? I love you and want nothing more than to be a part of your life. And I have found that I can be a strong friend in many ways. Do you have a dream? I am your friend, your supporter and many times I will be the one to do the research for your latest project; many times I will be your biggest fan and the world will know how proud I am at your accomplishments and how honored I am to have you in my life.
So you see, you and I are not that much different. I too have hopes, dreams, goals… and this demon…. Do you have an unseen demon that assaults you and no one else can see? Have you had to fight a fight that crushes you and brings you to your knees? I will be by your side, win or lose, I promise you that; I will be there in ways that I can. I will give all I can as I can, I promise you that. But I have to do this thing my way. Please understand that I am in such a fight myself and I know that I have little hope of a cure or effective treatments, at least right now. Please understand….
Thank you for spending your time with me today. I hope we can work through this thing, you and I. Please understand that I am just like you… Please understand….
Copyright of www.fibrohugs.com Written by Ronald J. Waller
~Just be yourself...and thats all you need to do~
Sometimes the heart sees what the eyes can't! Very true! All you need to do is to just be yourself, and be true to yourslef! Never try to be someone that someone else wants you to be! Follow your heart! :o) In fact. I've done this same thing this week myself and in hindsight, feel that I wasn't true to myself for doing this. But, I can't take it back. I just pray for forgiveness, and move on in my life. :o) I can not let it get me down. And I'm not. :o) I have too much of other things to keep me busy in my life to worry about it. :o) Plus...I'm the type that doesn't "push" my way of life, or my belief's of opions down peoples throats. I just don't believe in that. I feel that you can catch more with honey then viniger. I use my side bar and graphics and have links on them that leads to some pretty good sites! :o) I hope you take that the way I mean it....not at all meaning my freinds journals at all! :o) I also need to update those as well! :o) I'll do that when I'm done with this. :o)
I was reading a friend of mine's journal this morning and it struck a nerve. I can really relate with her. I feel the same. I leave so much out of this journl because of I know that certain people do read it, and I don't want any repurcusion from it! Which when you come right down to it....I shouldn't have to leave anything at all out of it, and, The people that do read it should just get a life and stay out of mine! I'm not able to write anymore, or I'd write on paper. But, I did get a suggestion the other day which is such a good idea! I will try that out! :o) Then, I can write freely! And thats what I want to do! :o) Boy...this has taken me almost as hour to get this much out! LOL :o) My hands aren't swollen today! YAY! :o) Just hurt! Just glad they aren't swollen! :o) My eyes still feel like they are crossed though!!! LOL :o) Now thats a funny feeling! LOL :o) Hard to find the right keys to type! lol :o)
I've came to the conclusion that the new medicine has to be the one making me eyes dilated and feel like they are crossed! I think NeNe was right! :o) I take the medicines 3 times a day, and right after I take them, is when I have the strongest feelings of my eyes! LOL :o) I just stay seated! lol I'm not getting up when I'm like this...hu uh! :o) That equals disater! :o) I did get some much needed rest yesterday. :o) Wasn't on line much. Not at all like me! lol :o) By the way, I'm still not getting all of my alerts. Is anyone else having these problems? Maybe it will work itself out. :o)
I've been so gratefull that I've been getting sleep again! YAY! :o) That helps so much as well! :o) Tomorrow I go to the pain clinic....I'm not sure how I feel about that one. I don't want anymore injections. Which I don't think he will give me any...but to be on the safe side, I'll tell him no way, if he says he's going to! I'm in way too much pain to mess around. My mom is taking me..so it will be 2 against 1! LOL :o) Kidding! :o) For some reason today, I'm having a lot of cramping in my thighs. I'll just say, it's the fibromyalgia! I never know who the culperate is! :o) So...I'm hanging it on the fibro. today! LOL
I need to end this...my hands are shaking more. Geesh! Thank all of you for your emails and you comments! And yes, God blesses you each and everyday! :o)
Monday, October 23, 2006
Neuropathy
Peripheral neuropathy
Introduction
Peripheral neuropathy is a term used to describe disorders of your peripheral nervous system. Your peripheral nervous system includes nerves in your face, arms, legs, torso, and some nerves in your skull. In fact, all of your nerves not located in your central nervous system — which includes the brain and the spinal cord — are peripheral nerves.
Neuropathies may affect just one nerve (mononeuropathy) or several nerves (polyneuropathy). Your nerves provide communication between your brain and your muscles, skin, internal organs and blood vessels. When damaged, your nerves can't communicate properly, and that miscommunication causes symptoms such as pain or numbness.
Peripheral neuropathy often affects people with diabetes and autoimmune diseases such as rheumatoid arthritis and lupus. Certain vitamin deficiencies, some medications and alcoholism can also damage peripheral nerves.
Treating the underlying condition may relieve some cases of peripheral neuropathy. In other cases, treatment of peripheral neuropathy may focus on managing pain. Peripheral nerves have a remarkable ability to regenerate themselves, and new treatments for peripheral neuropathy using nerve growth factors or gene therapy may offer even better chances for recovery in the future.
Signs and symptoms
Neurological symptoms may occur related to your central nervous system, which consists of your brain and spinal cord, or your peripheral nervous system, which links your spinal cord and brain to all other parts of your body. The extensive network of peripheral nerves includes the motor nerves, which help your muscles contract, and the sensory nerves, which allow you to feel a range of sensations. In addition, your peripheral nerves help control some of the involuntary functions of the autonomic nervous system, which regulates your internal organs, sweat glands and blood pressure.
Unfortunately, peripheral nerves are fragile and easily damaged. Damage to a peripheral nerve can interfere with the communication between the area it serves and your brain, affecting your ability to move certain muscles or feel normal sensations. Your symptoms will depend on the cause of your neuropathy and on which nerve or nerves are involved.
If a sensory nerve is damaged, you're likely to experience symptoms that may include:
Pain
Numbness
Tingling
Muscle weakness
Burning
Loss of feeling
These symptoms often begin gradually. You may have a tingling sensation or numbness that starts in your toes or the balls of your feet and spreads upward. Tingling might also begin in your hands and extend up your arms. In some cases your skin may become so sensitive that the slightest touch is agonizing. You may also have numbness, or even a complete lack of feeling, in your hands or feet.
At times your symptoms may be barely noticeable, and some people go years without realizing anything is wrong. For others, symptoms are constant, and especially at night may be almost unbearable. Signs and symptoms may include:
The sensation that you're wearing an invisible glove or sock
Burning pain
Sharp, jabbing or electric-like pain
Extreme sensitivity to touch, even light touch
Lack of coordination
If your motor nerves are affected, you may have weakness or paralysis of the muscles controlled by those nerves. And if you have damage to nerves that control certain functions of the autonomic nervous system, you might have bowel or bladder problems, reduced sweating or impotence. You might also experience a sharp fall in your blood pressure when you stand up, which may cause you to faint or feel lightheaded.
Treatment
The goal of treatment is to manage the underlying condition causing your neuropathy and repair damage, as well as provide symptom relief. If your doctor hasn't been able to determine the cause of your neuropathy, he or she may try a variety of medications to see which help ease your symptoms.
Controlling a chronic condition may not eliminate your neuropathy, but it can play a key role in managing it. Here's what your doctor may recommend for treating various underlying conditions:
Diabetes. If you have diabetes, you and your doctor can work together to keep your blood sugar level as close to normal as possible. Maintaining normal blood sugar levels helps protect your nerves, though your symptoms may initially get worse before they begin to improve.
Vitamin deficiency. If your neuropathy is the result of a vitamin deficiency, it's likely your symptoms will improve once the deficiency is corrected. Your doctor may recommend injections of vitamin B-12 daily for a few days, then once a month. If you have pernicious anemia, you'll need regular injections for the rest of your life, and possibly additional vitamin supplements. You'll also need to eat a healthy diet.
Autoimmune disorder. If your neuropathy is caused by an inflammatory or autoimmune process, treatment will be aimed at controlling your immune response.
Nerve pressure. In cases where neuropathy is the result of pressure on a nerve, treatment will likely focus first on eliminating the source of the pressure. That might mean adding ergonomic chairs, desks or keyboards to your home or office, changing the way you hold tools or instruments, or taking a break from certain hobbies or sports. In some cases of nerve compression, you may need surgery to correct the problem.
Toxic substances or medications. If toxins or medications are responsible for the neuropathy, it's criticalthat you stop taking the medication or avoid further exposure to the toxin to prevent the neuropathy from progressing further.
Medications
Medications can ease pain symptoms, but most have side effects, especially if you take them for long periods of time. If you take pain medication regularly, including over-the-counter (OTC) products, discuss the benefits and side effects with your doctor. Medications that may help provide pain relief for neuropathy include:
Pain relievers. OTC pain relievers, such as acetaminophen (Tylenol, others), and nonsteroidal anti-inflammatory drugs (NSAIDs), such as aspirin and ibuprofen (Advil, Motrin, others), usually help mild symptoms. For more severe symptoms, your doctor may recommend prescription NSAIDs. If you take NSAIDs for long periods of time or in large doses, you may develop nausea, stomach pain, bleeding or even ulcers.
Anti-seizure medications. Drugs such as gabapentin (Neurontin), carbamazepine (Tegretol) and phenytoin (Dilantin) were originally developed to treat seizure disorders (epilepsy). However, doctors often also prescribe them for jabbing pain. Side effects may include drowsiness and dizziness.
Lidocaine patch. This patch contains the topical anesthetic lidocaine. You apply it to the area where your pain is most severe, and you can use up to three patches a day to relieve pain. This treatment has almost no side effects except, for some people, a rash at the site of the patch.
Tricyclic antidepressants. Antidepressant medications, such as amitriptyline, nortriptyline (Pamelor), desipramine (Norpramin) and imipramine (Tofranil), may provide relief for mild to moderate symptoms by interfering with chemical processes in your brain that cause you to feel pain. Common side effects of these medications may include balance problems, dry mouth, nausea, tiredness, constipation and weight gain. To help reduce these side effects, your doctor will likely start you off at a low dose and slowly increase the amount of drug you take. If you're bothered by insomnia, your doctor may also recommend an antidepressant or a sleeping medication. Some studies have also suggested that selective serotonin reuptake inhibitors (SSRIs), such as paroxetine (Paxil) and fluoxetine hydrochloride (Prozac), may help relieve the signs and symptoms of peripheral neuropathy.
Other medications. Opioid analgesics, such as codeine or oxycodone (OxyContin) may be used to relieve pain. However, this class of medications produces numerous side effects, including addiction, that make long-term use of these drugs undesirable. Mexiletine (Mexitil), a drug ordinarily used to treat irregular heart rhythms, sometimes helps relieve burning pain.
Research aimed at finding more effective treatments for peripheral neuropathy is ongoing. For example, researchers are looking at developing nerve growth factors to reproduce the chemicals that signal your body to repair small nerve fibers. Unfortunately, no medications can repair nerve damage yet, but the body can regenerate nerves if the offending substance is removed.
Therapies
Several drug-free therapies and techniques may also help with pain relief. Doctors frequently use them in conjunction with medications, but some may be effective on their own. They include:
Transcutaneous electrical nerve stimulation (TENS). Your doctor may prescribe this therapy, which may help prevent pain signals from reaching your brain. TENS delivers tiny electrical impulses to specific nerve pathways through small electrodes placed on your skin. Although safe and painless, TENS doesn't work for everyone or for all types of pain.
Biofeedback. This therapy uses a special machine to teach you how to control certain body responses that reduce pain. You then learn how to control these same responses yourself. Biofeedback techniques are often taught in medical centers and hospitals.
Acupuncture. The National Institutes of Health has found thatacupuncture can be an effective treatment for chronic pain, possibly including the pain of neuropathy. Keep in mind that you may not get immediate relief with acupuncture and may require more than one session.
Hypnosis. Many adults can be hypnotized by a trained professional, but for hypnosis to be most effective, you also have to be a willing and motivated participant. During hypnosis, you'll typically receive suggestions intended to decrease your perception of pain.
Relaxation techniques. Designed to help reduce the muscle tension that makes pain worse, relaxation techniques range from deep-breathing exercises to visualization (imagining yourself floating in a tropical ocean, for example), yoga and meditation. You might want to take classes in one or more of these techniques, or you can learn them yourself using books or tapes.
Self-care
The following suggestions can help you manage peripheral neuropathy:
Take care of your feet, especially if you have diabetes. Check your feet daily for signs of blisters, cuts or calluses. Tight shoes and socks can worsen pain and tingling and may lead to sores that won't heal. Wear soft, loose cotton socks and padded shoes. You can use a semicircular hoop, which is available in medical supply stores, to keep bedcovers off hot or sensitive feet.
Exercise. Ask your doctor about an exercise routine that's right for you. Regular exercise may reduce neuropathy pain and can help control blood sugar levels.
Quit smoking. Cigarette smoking can affect circulation, increasing the risk of foot problems and possibly amputation.
Eat healthy meals. If you're at high risk of neuropathy or have a chronic medical condition, healthy eating is especially important. Emphasize low-fat meats and dairy products and include lots of fruits, vegetables and whole grains in your diet. Drink alcohol in moderation.
Massage your hands and feet, or have someone massage them for you. Massage helps improve circulation, stimulates nerves and may temporarily relieve pain.
Avoid prolonged pressure. Don't keep your knees crossed or lean on your elbows for long periods of time. Doing so may cause new nerve damage.
Coping skills
Living with chronic pain or disability presents daily challenges. Some of these suggestions may make it easier for you to cope:
Set priorities. Decide which tasks you need to do on a given day, such as paying bills or shopping for groceries, and which can wait until another time. Stay active, but don't overdo.
Get out of the house. When you have severe pain, it's natural to want to be alone. But this only makes it easier to focus on your pain. Instead, visit a friend, go to a movie or take a walk.
Seek and accept support. It isn't a sign of weakness to ask for or accept help when you need it. In addition to support from family and friends, consider joining a chronic pain support group. Although support groups aren't for everyone, they can be good places to hear about coping techniques or treatments that have worked for others. You'll also meet people who understand what you're going through. To find a support group in your community, check with your doctor, a nurse or the county health department.
Prepare for challenging situations. If something especially stressful is coming up in your life, such as a move or a new job, knowing what you have to do ahead of time can help you cope.
Talk to a counselor or therapist. Insomnia, depression and impotence are possible complications of peripheral neuropathy. If you experience any of these, you may find it helpful to talk to a counselor or therapist in addition to your primary care doctor. There are treatments that can help.
~To be me~
Well....I had so much fun last night when my friend came over last night! It was great! :o)
I got to bed late...well, late for me. :o) I just sat, and reflected back on so much stuff. :o) Mostly good and some bad. But, we both have managed to get through our bad times and have over come our bad times in our lives, which we both say thanks to God! :o) So very true! :o) We're proud of each other at where we both are in our lives! :o)
My home health aid will be coming in a few minutes. :o) My physical therapist came this morning. Ouchie! But...it helps. lol Sounds a bit funny to hear that hurting the places the are hurting me in the same places that are hurting, helps! lol I don't get it either! :o) A win win situation? Who knows! lol :o)
Moving on..........................
Today is such a nice and gloomy day again! lol Such typical Ohio weather! I'd expect nothing different! lol :o) When I got up this morning it was 32 degrees out! Yikes! Thats freezing! No wonder my body is in such a mess! That could be one of the reasons. :o)
Of course, my shoulders, back/spine, hips, thighs and ankles and feet my elbows and hands and wrists are killing me today! My knee cap on my left leg moved out of place earlier while I was walking in the bathroom up stairs, and I almost fell into the tub because my leg bent backwards, the way a leg isn't suppose to move! So, I had to stop, put it back in place, then move on! Geesh! My knee caps are just a pain, because they always slip out of place! ggrrr! My eyes are still dilated today...and I still don't know whats causing it. It really hurts. It even stumped my physical therapist too....she also a nurse so I ask her a lot of questions. She seen them and had no clue. Oh well. :o) I'll just add that on to my list of other things that go wrong! lol :o) My right foot is numb right now. Now that feels weird! It does that a lot! My heart doctor says it has something to do with my circulation...which I already figured that one out on my own. :o) What I'd like to know is, how to fix it? But again...I'm hoping that it won't take years like it did to diagnose the fibro. Ok...My eyes are getting seeing blurry and starting to see double now. I should get off of here. LOL :o) Geesh..what a day this will be! LOL
Thank you all for you emails that your comments! :o) God does bless all of you! :o
~Detachment~
Holding back from the need to rescue,
Giving another person "the space'' to be
Disengaging from an over-enmeshed or
Willingness to accept that you cannot
Developing and maintaining of a safe,
Establishing of emotional boundaries
Process by which you are free to feel
Ability to maintain an emotional bond of
Placing of all things in life into a healthy,
Ability to exercise emotional self-protection
Ability to let people you love and care for
Ability to allow people to be who they
Ability to avoid being hurt, abused, taken
"Only one thing has to change for us to know happiness in our lives: where we focus our attention."
-- Greg Anderson
"He who would have beautiful roses
in his garden must have
beautiful roses in his heart."
-S.R. Hole-
~Just a thought~
The universe is aware of both the concrete goals we actively pursue and the nebulous dreams we have not yet begun to refine. Neither our struggles nor the daydreams that inspire us are beyond the range of universal perception. Yet to manifest our aspirations, we not only need to know what it is we generally wish to achieve; we also need to clearly articulate these aims to ourselves and the universe. When we create a list of what we want, citing each item in as much detail as possible, our aspirations take on new substance. What was once a mere wish becomes real and achievable when put into words. As you pour the contents of your heart and soul into your list, your well-defined ambitions become a part of you, and the universe responds to your new determination by placing opportunities related to your objectives in your path.
Whatever the nature of your desires, your list can help you channel your intellectual and emotional power into your efforts to realize them. The list you create should not simply be a record of your individual goals. Rather, it should be a comprehensive, exhaustive catalog of each target you want to reach and your reasons for aiming for them. This may mean that your list will encompass many pages of text, since when you write down and review your ambitions, you empower yourself to more accurately direct your goal-realization efforts. You then also have a framework in place that helps you distinguish success from setbacks. If you keep your list in a convenient spot and review it daily, you will inadvertently reaffirm your conviction to your aspirations, demonstrating to the universe that you are truly devoted to your chosen path while keeping your objectives fresh in your mind. As you compose your list, try not to edit or judge what you have written. Some of what you want may seem outlandish when considered in the context of your current circumstances. Whether you are destined to fulfill the items on the unique long-term agenda you create in a year, 10 years, or 20 years, if you are free with your ideas and understand that you may not bring these dreams into the realm of reality for some time, your list will attract the universe's benevolence even as it energizes and inspires you.
Sunday, October 22, 2006
Humbled
Yesterday was a pretty good day. :o) I recieved fudge and buckeyes (a kind of candy) from my favorite candy store here in town called Winans. :o) Which...I'm really not suppose to have! LOL but...since he went through all that trouble to get it for me.....I'll just have to eat it...but not a lot at a time! lol :o) It was a surprise!
I got another surprise as well yesterday! A very dear friend of mine called me yeaterday and is going to come and visit me today! :o) I can't wait! :o)
I was looking for more information again yeaterday, and came across a few things that I thought would be helpfull for everyone...so I posted them. :o) Oddly enough, I'm still learning myself about Fibromyalgia! Plus SMS. Which there is very little on that syndrome. Makes it harder to learn more about. But, I'm not going to stop, I'll find somrthing out ther in the cyber world somewhere! :o) And when I do...I'll share it as well. :o)
This morning is still a gloomy looking day out, but thats what it looks like most of the time here in Ohio! lol You just have to make the best out of what you have been given! :o) A lot like these diseases....you are given lemons...make lemon aid! :o) I am in a lot of pain still today, but I still do the best as I can with what I have. What else can I do? You aren't able to change what can not be changed by you, yourselfe. So, I just chose to live, and live the only way I've learned how to. I've put my health issues in God's hands!
I was thinking about my entry when I was told that I was nominated and my reaction. This is my first year that I participated in this and it was a lot of fun. :o) And to even think that there were people that even voted for me was a huge shock for me to say the least! I hope that I didn't come across that I was not humble to being a nominee. It's very rare that someone or something can make me speachless! That did! :o) lol Again, thank you all that voted for me! :o)
After writing in this, I'm going to check my mail then relax. :o) I really need to! :o)
Thank you so very much for all of you emails and comments! And God bless all of you! :o)
Saturday, October 21, 2006
Information
ME/CFS & Fibromyalgia Good Doctor List
(Last Revision: October 8, 2006) Additions and deletions to the Co-Cure Moderators. This page represents the index to the "ME/CFS & Fibromyalgia Good Doctor List," a collection of listings, of doctors who have been recommended by and for CFS/CFIDS/FM patients. The physicians are listed on separate pages by country and state/province/region and, within each page, by city. DISCLAIMER: The "ME/CFS & Fibromyalgia Good Doctor List" is provided as a convenience to CFS/CFIDS/FM patients. Co-Cure has not verified any of the information submitted for the purpose of inclusion on this list and provided herein as to accuracy nor professional standings. As always, patients should check with local/regional agencies that monitor physicians prior to engaging services/treatment. NOTE: The lists that comprise the "ME/CFS & Fibromyalgia Good Doctor List" are not to be reproduced in part or whole with the intention of use for profit. All available physician listings are indexed below. If the country, state or province does not appear in this index, this means that no physicians have yet been recommended for that area. Australia
INDEX - ME/CFS & Fibromyalgia GOOD DOCTOR LIST www.co-cure.com
Happy Sweetest Day!
Happy Sweetest Day! :o) I'm not sure who all celebrates it, but in my area....we do! :o) If you don't know anything about it...I'll do my best to explain it. It's when you and your "sweetie" exchange a card or something nice to each other! :o) Kind of like Valintines day! But not! lol :o) My daughter got a beautiful earring and necklace set and a card from her boyfriend! :o) She got him a card and I don't know what else yet because she's in class right now. :o) So, thats what Sweetest day is! :o) My husband calls is a second chance if you screwed up on Valintine's Day! LOL :o) Too funny! :o)
Last night, my husband and my daughter and grandson and I went to this place thats in our neighborhood for dinner. It's kind of like Piqua's best kept secret! :o) For the first time in so long, I had layed down a took a nap. And my daughter woke me up and said to get dressed! :o) She told me where we were going...so, I hurried along as fast as I could! That opportunity just doesn't come arround in this house very offten at all so I jump at that chance! LOL It was so nice to get out of this house, and to go out as a family as well! :o) It's a place that when we walk in, they know us and know what we are going to order to drink! And mostly what we will oder! Ok...now I have the song in my head from the show "Cheers!" lol But it's true! :o)
We came home. To get out of the car was like something major for me to do! Already my joints were hurting and my muscles were cramping up! I have a feeling that this year is really going to hurt! Yikes! My husband was going to go get my wheel chair to help get me into the house! I said no. The reason is beacuse even by sitting in the wheel chair, my body would feel the same way. I made it to the house. Got the clothes off and something loose and warm on. I was starting to feel a bit better within the hour. I took my night time medicines. I was ssitting in my bed relaxing. The pain just wasn't going away. So...I just have to wait this out, nothing else that can be done. :o) ....This too shall pass!
This morning, it happened to me again...I got up from sitting, and I had my cane....I stiid up and I could move! My legs and my upper thighs! They were rock solid! My husband asked if I was alright...and I told him no! And that it was happening again! I touch my thighs...both of them...they felt so weird! As if they were so tight! I tried to do the mind over matter...trying to tell my legs to move! That doesn't even help! Whoa! After standing there in one position for a bit...I felt my legs start to relax. Whew! Then I started to move them to get them going! I feels like i'm struggling with my body and my mind when this stuff happens...if that makes sense?! It's the weirdest thing. I honetly hope that there are not anyone out there that experiances this at all! It gets very scary. I would much rather be the guinea pig then anyone else out there. And I do pray that as well.
In my modg podg life...I never know what will happen next! Which does make it kind of an intersting life to me that is! LOL :o) I honestly do love my life as it is! Believe me...I've come a long way since I've been diagnosed with fibromyalgia! :o) My daughter and my best friend can tell you that! :o) I've learned how to deal with the things that I have lost in my life. As in my abilities. At first..boy was it hard to deal with, and I creid so much. Who wouldn't? I'm only human! I remember one time my son came to me to let me know that he and his friends were going to go sledding. and I got up and said wait on me! Then it hit me! No...I couldn't do that anymore, and I sat down and cried! Because I always played and done things with my kids! I've lost that! :o( And it hurt. That was keeping me in a "stagnant" position that I needed to get out of and quick! So, each time I lost something, I would grieve that loss, and move on. Because I am human, and thats what we do! Thats normal! :o) Having a disease that no one can see on the out side is hard. And very hard to get it across to others, when they think that maybe you might me exaggerating a bit, which I know that you're not! Because I've been there! I still am....but, I take a different approach to it now...all I did was learn by trial and error. And, thats what life is trully all about anyways! :o)
Thank you so very much for all of your emails and comments! And God blesses all of you everyday! :o)