Tuesday, May 20, 2008

~Clueless more so now then I was before! And pictures...

Yesterday, I had an appointment to see my neurologist in Middletown. To me, thats a long and far ride. It seems so weird now because I used to just zip on down to Cinncy for a modeling shoot! It takes all I have now just to drive myself, to the doctors. :o)
The doctor said that he doesn't feel ready yet to put me on any MS medicine because of the side effects. Having all these stupid health problems now, is making it harder on me. He did raise my Lyrica. This medicine does help with most of the electrical "shock" that I feel. He was not very happy to see my legs, ankles and feet. He said he wishes he knew what to do for me, but his knowledge is at the other end, my head. :o) Plus, he too was surprised that no one has helped me yet.
I know my mom has only seen this when it happens, here in my journal. I told her the pictures don't look anything like what they truly look like. She took the pictures for me. This time...was very painful in my shins, I could actually feel the 'water' move in there when I had to walk. This time, my legs, ankles and feet were really big and hurting badly. And you bet...I was in my bed as soon as I could! This morning they're way down, but not all the way down. That usually means that they're going to do it again. Oh joy! Not!
Today, thats what I'm going to do, stay in bed as much as possible. I don't want to swell up again. It hurts and it scares me. Because I don't know why they do this and do it so big! I know its from the congestive heart failure, but it still scares me.
My daughter was sending me pictures last night of my 'babies', and they're so adorable! The second picture is little 'oinker!' :o) He's just too cute! lol And he looks just like his mommy did! :o) Full of nothing but cheeks and chins! lol :o)
I need to go for now. My legs are starting to hurt. <sigh>
I do hope that everyone has a great day. Gods blessings to all of you!


chat2missie said...

Try to have a decent day!

gehi6 said...

So sorry about the swelling.  It would be scarey.  I thought that photo of Kayden and the baby was so adorable I could have looked at it all day.  What beautiful children!  We have had 2 new babies in our family in the last 3 months and one got pneumonia.  They did not know for a while that it was caused by the mother having cladmydia and they had to give the baby special medicine for it.  But thank goodness he is getting better now!  The other one looks like Andrew, big and gaining wt. fast.  Gerry

specialadyfink said...

I'm with that head dr.-I am surprised and pissed that they haven't done more for your swelling.
My feet have been swelling some when I stay on them very long so I can only imagine what it's like for you with the severity that they are swelling.
Sorry :o(

ajquinn354 said...

Lisa I'm sorry you've not gotten any help with the edema....I have CHF also, have for almost 8 years and know when I get any swelling that elevating my legs above the heart level when laying down really does help. An extra pillow or two should be more than sufficient to keep those legs elevated above the heart, hope this helps you. Even when up and reading or watching tv, I keep my feet elevated, makes a world of difference for me with the swelling. Know I care.  Arlene (AJ)

hugsdoodlewacky said...

((((((((((((((((((((LISA)))))))))))))))))))))))I can see how much pain you are in,when I look at the pics of your feet.I wish I can take it all away for you.You have been throguh so much.Just know,that I am praying for you.I love thoes pics.The boys are soooooo cute.He does have adorale cheeks and looks just like His Momy.They all look so happy.

cuteallison1980 said...

I can't say more than I already have.  Just know I am always here and I am always praying for you.  Have a happy tomorrow.  Luv ya!


dca721 said...

Awww Lisa,
I am sorry.
Does it help to elevate your feet?  Or is that bad?
Wish I could help you dear.
I haven't forgotten you, I haven't been online much.
My Mom in hospital since April 9th 3 weeks, then transferred to nursing rehab facility.
She may have Parkinsons at 90...she is having trouble walking moving.
Went in the hospital for diareahea and they screwed her all up.
My sis sent her to hospital closer to home and her work which I understood, but her dr. of 40 years at other hospital who knows her.  Ass hole dr. put her on all these drugs she did not need,
looked them up one for alzhiemers, schizophrenia but none of this did she have.  She was naturally depressed over the death of my niece her grandaughter.  She had sever reaction to these drugs and now cannot walk, is rigid, hard for her to talk loug, hands stiff, neurologist thinks its from meds the asshole drs. put her on in the hospital.  Strong drugs for such an old woman and stuff she didnt need, so now more problems.  I've been going there every day, although she's slow to talk her mind is good and feel the staff sometimes isn't real nice to her.
Feel I need to be there to be her advocate, hell I gotta beg for meds for her, what happens when I am not there I wonder?  So, I am there alot and so tired.  Things can only get better, right?
Glad you have your grandsons to cheer you.  I dropped my boy off to see my dad last night to cheer him up with my little dog while I went to see my Mom, Dad is lost without her, seeing my son, his grandson and my dog cheered him up.  I hope somebody can just shoot me once this is all over!
Take care dear.

heavenlybama said...

I don't understand why the neurologist didn't call your dr to discuss your case.  I think he could have done that.  It just pisses me off that no one is doing anything.  Anyway.....I know that is very painful for your feet to be swelled up like that.  I get like that sometimes.  Keeping your in my thoughts and prayers Lisa!

seraphoflove9001 said...

Oh Donna. My heart goese out to you. :0( I wish I could help you. I would feel the same way. I'm still there in fact. I'm sending you good vibes and in my prayer.
Hugs to you.