Monday, February 28, 2005

Not to well today.

I am not feeling all that good today. The pain has worsened a bit more again. :o( My physical therapist will be here this morning...I'm hoping she will help.

Sunday, February 27, 2005


Yesterday my daughter and I went to the cinama to see "Cursed." My husband is still doing electrical work in the house, and he needed us not to be thats were we went. :o) It wasn't a bad movie...we both liked it. While I was sitting there...which I was left arm went numb on me 3 different times. Thats never happened before! My right arm and left leg do it all the time...but this was my left arm...and it kind of bothered me. I felt fine. I had gotten a bag of popcorn, with extra butter, and I added more salt to it...and the container was hard to handle, and I pour a little too much in it. :o( Not good. My daughter and I were sharing it, and when I was done, thats when my arm started to go numb. Right now...I'm going to blame it on the fibro..I have no other evidence of it being anything but the fibro. legs were so weak, I had a very hard time getting out of there, and to my car. I didn't take my walker, instead I held onto my daughter's arm. I thought I was going down a few times. When we got home, my husband came out to greet us, and he could tell by the look on my face that something was wrong. He came over to me, and I told him that my legs were about to give out on me, and he took me and got me inside the house. :o) Whew! I don't know what happened, but the next time.....the walker goes with me! :o)

Saturday, February 26, 2005

The fibro has a mind of it's own.

Well....Not too much has changed. The good thing is that I'm not a hard 8 right now...I'm in a 7. Good! :o) Theis fibro stuff really wears your body down. I'm still having a hard time getting around the house. I just "grin and bare it." What else is there to do? I still don't feel that I can just sit and talk to anyone about how I really do feel. If asked, I just say, "I'm ok." Because I know deep inside...when someone asks how you are doing...they "really" don't want to know. Maybe soon I'll be able to actually say how I really feel. :o) I can wait...I have all the time in the world. :o)

I think of life itself now, as a wonderful play that I've written for myself, and so my purpose is to have the utmost fun playing my part.

       .......Shirley MacLaine

Friday, February 25, 2005

Still in pain.

I was able to get a good nights sleep last night. But, it didn't seem to help my pain. After a nap went from one side, to my whole body. It's still a hard 8. I didn't do much yesterday, and I know I won't today...I can't. I'm hoping that I will be better tomorrow. :o)

Thursday, February 24, 2005

Not again.

I did not have a very good day yesterday. I was in so much pain, I could barely walk. Baby steps. After my physical therapist had left, the pain seemed to get worse through out my day. I layed down for a hopes that it would ease the pain, like it normally luck. I went to bed at 10:30 and woke up in pain from my left side of my body at 2:45...and my left knee was in the worst pain. Nothing I did helped. I'm in a pain level of a 9 right now. I pray it doesn't go into a 10.

Wednesday, February 23, 2005


Ok....yesterday was not a very good "pain" day for me. :o( I was an 8! Ouchie! I did, however, get a good nights sleep once again....which does help with my pain. hasn't yet this morning. I woke up with pain all over my body. Not good. My right shoulder and arm, my lower back, my left shoulder, and my left hip and leg, and both of my knees! Whew! I think that covered it. Oh...and my right hand is "doing it's own thing" today as well. It's having a lot of muscle spasms today. It's a weird feeling. It's making it a little hard to type. My physical therapist just left...and she said that my right shoulder was very swollen, along with my lower back and left hip. Geesh! Last right arm, my right upper leg, and the right side of my face started having pretty bad muscle spasms too! I'm going to blame it all on this stupid weather we are having. Well...not all of it. :o) It's all a part of my life! :o)

.......You can discover more about a person in an hour of play than in a year of conversation.


Tuesday, February 22, 2005

The same.

I'm still feeling pretty much the same, as I did after my physical therapist left yeaterday. Except for that now my left hip has joined in on the festivities of the pain party thats going on in my body. I didn't do much yesterday....mainly because I couldn't, so the only thing that I did do was to make super. Whoo Hoo! That just wore me out. I went to bed at 10:30, and I woke up this morning at 8:30! YAY!!! :o) my body and I really needed that sleep. :o) It looks like this new medicine that the new neurologist gave me is going to work out for my body. High 5 to that! Got to go...I need coffee! :o)

Monday, February 21, 2005

And the sun will still rise.

Yesterday was my daughter's 20th birthday. :o) We got her a chocolate cake with chocolate icing. Thats what she's been craving while being pregnant. :o) So cute. :o) My friend came over yesterday, and helped with getting my computer to recognize my digital camera...yay! So now I can show you what my daughter looks like at 6 months. :o) beautiful as always. :o)

I am still having pain in my right shoulder and neck area. My left knee decided to act up on me as well, yesterday. As if my legs weren't enough in pain. lower back was giving me a fit too. My physical therapist will be here this morning...and I just can't wait. It'll hurt, but boy is it worth it. :o)

......Your body cannot heal without play. Your mind cannot heal without laughter. Your soul cannot heal without joy.

        .....Cathrine Rippenger Fenwick

Sunday, February 20, 2005


..........Be glad of life because it gives you the chance to love and to work and to play and to look up at the stars! :o)

        ...Henry Van Dyke

Saturday, February 19, 2005


I had a good day yesterday. My pain level was betwwen a 6 and 7! YAY! I was playing and talking to my daughter's tummy....(my first grandbaby) and he really seems to love it. lol I have so much fun just doing that, I can't wait until he's born! Thats May 25. My daughter and I watched a movie, Saw....Whoa! In my was good. It had me on the edge of my seat the whole time! I was able to get a nap in as well. That helps my pain level....the more sleep I can get, the better I do feel. My friend came over last night, and we played a game. :o) I can't remember what it was called, but it had a dvd with it, and it was all about guessing movies. It was fun! I went to bed at 10:30, and then got up at 5:00. I suppose thats better then nothing. I did, whoever, start my new medicine, Mirapex. I think I will have to take 2 pills tonight. The doctor said I would probably have to. He was right. It did seem to help my legs feel a bit better. Very glad about that one. :o) I guess thats all for now. :o)

Friday, February 18, 2005

A better day

Yesturday's visit to see the new neurologist went great! So much better then I expected. :o) He actually knew what he was talking about! :o) He gave me samples of Mirapex for my restless leg syndrome. He told me if they helped, I could call the nurse and he would write me a scritp for them. I'm going to try the new medicine tonight, since it's a weekend night, while someone will be here with me, just in case. The nurse just called me to say that she missed saying goodbye to me yesturday, as I was already out the door. Wow...what nice people! I'm so not used to that. :o) I would love to change my neurologist to him. I am very pleased with everything that was talked about, and left feeling that I had no questions to ask, or even that I might have forgotten to ask, because everything was covered. :o) Very impressive. :o) My seizures are myoclonic seizures....which I already knew....but my other neuro would insist that my seizures had no point in them! Yea...makes no since to me either. day went very good yesturday. :o)

Thursday, February 17, 2005

New neurologist today.

I woke up at 3:00 this morning. I go to see a new neurologist today. I'm not looking forward to this at all. My primary care doctor is sending me to him, because of the way my body is numb. My other neurologist doesn't seem to want to help me anymore about what could be wrong with me. we go again. I'm nervous, and in more pain then usual. Gee...who would have thought?! I wasn't feeling very well at all yesterday, and slept a lot. I'm still not feeling very well this morning. I still can't seem to get warm. I'm still carrying a fever that I've had for a few weeks. Yes, my doctor knows this....the last 2 times I've seen him, my temp. has been around 100. He doesn't seem to know why either. Thats life.

Wednesday, February 16, 2005

Woke up too early.

I got up at 5:00 this morning.....a bit too early. was 67 degrees out, and sunny, now it's 35, and snowing! Weird weather. My lower back and hips have been hurting me all day yesterday. Now this morning, it's all of that, and my left leg and right arm. It has to be because of the weather.

I read that book; Fibromyalgia for Dummies...and I highly recomend it to everyone. It's in plain english so that everyone can understand it. I'm trying to get my son to read it.....because he is one that still doesn't understand why I can't do certain things on certain days. I've tried to explain that it isn't by my choice that I'm this way. But, he doesn't think that something like fibromyalgia can affect a person so quickly, and in the way that it does. Maybe he has to come to terms with this on his own. thats all for now. :o)

Tuesday, February 15, 2005

....and the doctor said....

Yesturday I went to my sleep specialist. He is so nice. I'm still carrying a low grade temp. I don't know why. Oh well. The doctor said that he see's how well I've been doing since the last time I had an appointment. :o) He's glad that I'm doing pretty good with my weight. :o) So am I. He checked my legs for circulation. I still have somewhat of a problam still with that. But, He was happy that it wasn't any worse then it could have too. :o) All in all, the appointment went great. No bad news. Well....he just wanted to know why my other doctor didn't put me on some kind of pill to help with my high cholesterol, or a meal plan. But...oh well. I'm fine. So...I had a very good Valentine's Day, and Aniversary yesturday! :o)

Monday, February 14, 2005

I found a great web site on the vinegar!

I just did a search on the vinegar and water remedy, and there's so much that the combination helps! I'm going to provide the web site for you. I found it very interesting. :o) remedy and treatments using apple cider vinegar

I stayed up a little too late.

Last night, I had to stay up to watch the Grammy Awards. :o) I'm a big music lover. :o) My friend was over, and she told me that drinking a glass of viniger and water everyday, would lower my cholesterol, and flush out my system. Hmmm...I can't stand the smell of viniger, but, if it will do all of that, I'm very willing to try it. I'll look it up on the web, or if anyone has heard of this as well, can let me know. :o) I have an appointment with my sleep specialist today. I haven't seen him in awhile, so I really need to have this appointment. Everytime I go to make an appointment with him, I forget to do it....fibro fog? :o) Today is my 19 wedding aniversary! Wow! Seems a lot longer! lol (kidding?) lol It's raining out today, and it's also pretty warm here. It's 50 degree's out right now, and I'm getting over heated. I'm ending this, so I can cool off. :o)

Sunday, February 13, 2005


The day before, my body must have been on a "shut down" mode. Because yesturday, I was feeling better. My friend came over, and we went to Jo Ann Fabrics to look at the crafts. I haven't been there is so long. :o) I was able to get a few things of beads, so I can start on my jewelry making again. :o) I'm excited to start making them again. :o) Then we went to a Party Supple store here in town that I had no idea existed! lol Shows how long I've been to that area of town! lol It had a lot of fun things and a varity of themes for was pretty cool. :o) It gave me a lot of ideas. :o) When I got home, I was still feeling ok. My husbands mom has a lot of jewelry that she sells, and a lot that are just not good enough to sell....and she told me that I could go over and look through them and take what I I did! :o) I took my daughter and her boyfriend, and we had fun doing that. I came home with so had to make a lot of room in the room I'm in now just for them. Plus, she gave me 3 jewelry boxes, and 6 big round tins full of things, and 2 bead boxes of beads! Wow! It's going to take a lot of time just to go through them all and to get them in an organized fashion. So....I'll be busy for awhile. :o) A very good thing. My right shoulder is still hurting. I suppose it's going to be like my left hip....something thats going to stick around for awhile. :o) Oh well. So, my day yesturday was a pretty good day. :o) Lets hope that todat will be the same. :o) 

Saturday, February 12, 2005

Not feeling well.

I was not feeling very well yesturday at all. Not the fibro....that has a catagory of it's own. I think I'm coming down with something. I took 4 naps yesturday! Wow! I went to bed at 8:30 last night! Plus...I just got up! It's 9:05 right now, and I got up at 8:40! I'm still very weak. I can hardly walk. The only thing that I feel that has made me this way is that I was cold, and couldn't get warm, and just very weak, and way off balance. And I suppose I was also very tired and really didn't realize just how much. Now the fibro....yeppers...I'm in pain. Again my shoulders and my right arm. Just thankful that my legs aren't in too much pain with me being so weak and off balance. Whew! Not a good combo! :o) Welp...thats all. :o)

Friday, February 11, 2005

My stupid arm again.....

Well.....I woke up way too early this morning. My right arm was numb again, and in some pain. So, it woke me up. I got up at 2:25 this morning. Geesh! I hate when that happens! :o) Oh gives me time to myself to do some more relaxation. That has really been a big help for me. If I don't do that......I'd be a basket case right now. lol Not a good thing. :o) The only thing that I plan on doing today, is just relax and to take my shower....thats it! And praying that nothing happens thats stressful to me today. I need a day off from the stress thingy! :o) I do hope that everyone is not in much pain today. :o) Please take care. :o)

Thursday, February 10, 2005

Doing better.

This morning my physical therapist had to wake me up! Wow! Me? I normally don't sleep so late. Yesturday morning, my son woke me up at 10:00! I can't remember the last time I've ever slept that late! He told me that he was worried about me. Bless his heart. :o) I thanked him. But, I still felt like I could have slept longer! I don't understand the reason why I've been sleeping so late. It could be because I am so exhausted. I do have so much on my mind. I go to bed at 10:00 at night....but I usually get up way before 7:00. Oh well. It doesn't matter...I'm finally sleeping! :o) I looked up the signs of a stroke yesturday...and the symptoms are having a numb leg or arm on one side, dizziness, blurred vision, and trouble speaking and remembering....LOL...I already have that! That goes along with having fibro! :o) Good Grief! That means I wouldn't have the faintest clue if I ever start to have one! lol Yesturday...I did some more relaxation.....a breathing technique. It has been working good for me. :o) If I don't do something...I'll fall to pieces. If I don't laugh about what I have...I'll fall to pieces. So...I do my best to make light of this and live. Thats all I can do. :o)

Wednesday, February 9, 2005

It's been awhile since my last entry....sorry.

On computer crashed on me! Yikes! I felt so alone without it! lol :o) ( kidding) But...I did need it so I could look up some very important information. I got the computer back late yesturday. :o) YAY! So...I can now do my research. A lot has happened since my last entry. Weird how that works. :o) I still haven't been able to get back to everyone to let them know what happened. I will though. :o) Ok....on Monday, I had a doctors appointment for a follow up on all of those horrible tests I went through...and the blood tests. My appointment was for 1:15, and I didn't get out of there until about 3:30. What I heard from my doctor was NOT what I was expecting. This doctor is a new primary care doctor. I changed to him only a few months ago, because he does know and treat fibromyalgia. Now....I'm very glad I did. I've gone in for the same kind of tests before that my old doctor gave me. Nothing was found....they all would come back normal. Hmmm....he wasn't "on top" of things in my opinion. Well....I was told that I had "greasy blood!" I started laughing! I thought he was joking. NOT! He was very serious. He showed me all of my test results, and all of the blood work that came back very high, and dangerous! OUCH! Not good to see. While the doctor was telling me why my tests came back that way, and why didn't my last doctor catch this and/or do anything about this....I went into a daze! I could see his mouth move....but I wasn't able to hear him. :o( My mom was with me, and I had a note book and pen, and was trying my best to write everything he was saying to me, down. Yea right! I did do my best. What it all comes down to is blood sugar is very high! What? I'm hypoglaucemic! It wasn't "computing." I have to now be tested for diebeties. My liver isn't doing so hot either. He needs me to have a liver biopsy. There is something going so wrong inside of me, that my red blood cells are so high, I have too much blood! What? Never heard of that either. It's just my body's way of trying to fight something off thats in there that isn't suppose to be, thats wrong. But...the thing that really floored me was when he was talking about certain blood tests that didn't come back normal, and very high....were the ones that told him that I really need to be closely watched, because I can have at any time, a stroke! Then a big possibility that I could have a heart attack! Good Grief! So....he did let me know that this had to have been going on for a long time, and if my other doctor ever gave me blood tests...yes he did, but he was a quack! I feel pretty safe with my new doctor, because he is sending me to a specialist for the liver and my "greasy blood." The only way that I've been getting through all of this not so good news, has been doing some breathing techniques to relax. I just can't wait until all of this is over with, and I'm finally fixed. I can deal with the fibro, but it's a little harder knowing this other stuff, and trying to deal with it as well. I think I'm doing pretty good. :o) Thats all for now. :o)

Saturday, February 5, 2005

Up early.

Well....I got up way too early this morning, because of my right arm in so much pain. I got up at 3:00. Bummer. Oh well. This morning, when my husband gets up....we have plans on going back to Wal-Mart to put a crib in lay away for my daughter. I can't wait....because it's the one I want her to have for the baby. :o) My son took her to JC Penny's on Thursday, and baught her a new pair of maternity pants, and an out fit for the baby! :o) That was so sweet of him to do for her. :o) So's been between my son and his girlfriend, and me that has been getting her the things that she needs for the baby and herself. Sad that the father of the baby doesn't...and he lives here! Oh well....she'll one day see what he "hasn't" done for the baby and her.

My pain had gotten so much better since yesterday morning. Whew! :o) I layed down for a nap, and it really helped the pain. Breathing was making my chest hurt, which made my shoulder hurt, and then go down my arm on my right side. Ouch! I'm just thankful that I can breath without it making me in such aganizing pain. :o) Well....thats it for now.

Friday, February 4, 2005

Ok....I'm really in pain now! Ouchie!

Ok......Now I'm really in pain now! My daughter and I went to too many places in two days. On Wednesday, we went to the book store so I could get a book. It's located in the next town. Then I took her out for dinner for her birthday. We came home totally exhausted! Then....I guess I didn't learn my lesson, and we went to Staples and Wal-Mart yesterday. I wanted to get some more extra large pens, because I can not write with "normal size" pens. And at Wal-Mart, I wanted to get some beads and jewelery making crafts, to start making them again. That never happened. lol I got in there, trying to remeber what it was that I was there for, and ended up getting new sheets for my bed, and things for my daughters baby. :o) I totally forgot. By the time I remembered, I was way too tired to go all the way back to where the crafts are located to even look! So...we came home, both exhausted once again. I had in mind to lay down, because I was really in pain. So...I changed my sheets, then I noticed that there had been things left while I was out, that needed to get done. I wasn't able to lay down. :o( So....this morning....I'm really paying for it! OUCHIE! My pain level is between an 8 and a 9 right now. I've even taken my medicines. Oh least I will have something to read while I'm down for awhile. :o)

Thursday, February 3, 2005

What a day!

Yesterday was an "ok" day. Pain wise, it was about a 7 still. But....I still try to fight it. Doesn't work that way. I payed for it. There was a book I really wanted to get, and yesterday I was able to get out to go and find it. The book is great! I love it! It's called, Fibromyalgia for Dummies. It's so easy to understand and read. I highly recomend it! :o) I found in one of those emails that were sent to me by Micki55555, she had it listed under books to read. I like it because you don't have to read all about doctors studies, and scientific studies on this and that, or between the lines to try to figure out what you're reading. This book gets straight to the point, and very easy to understand. :o) My physical therapist came this morning. OUCHIE! Boy...did this session hurt! But well worth it. Until next time....... 

Wednesday, February 2, 2005

Well....I thought it would be over?

Yesterday started out to be a very stressful time. I really was so stressed, my neck and shoulders started hurting so badly, it felt as if I had whiplash all over again! My pain level was a deffinate 9! I didn't have to testify yesterday. But.....I will on March 17. At least by then, I will be ready for the trial. Whew! I will be able to do my own techniques in relaxation. :o) For my mind and my body. After I came out of my clothes, and into more relaxing pj's, I started to relax so much, I got very tired. :o) Plus, I could feel the pain leave my body, little by little! YAY! Now, I'm just back to my "normal" self of a pain level of 7. :o) Big difference!

I still want to point out that the links I provided 2 entries ago, are a must see! The first link is the best! Just sign up for the information packets, and you'll recieve 3 emails packed full of links, and information. :o) I can't stress it enough....I have learned so much more from doing this myself. I've even put some of the information on my own website. :o)

Tuesday, February 1, 2005


Today, my stress level is very high. My mom is going to court today, and I need to go with her to help. I'm very nervous. It's not her fault that I feel this way. She is getting a devorce, and I need to be there. I'm sure she is more nervouse then I am. I got so nervouse yesterday, I thought I was going to have a seizure again. Which I suppose wouldn't be all that bad. The last one I had a few weeks ago....ever since then, I've been sleeping better. Seizures are weird that neurologist once told me that everyone should have one, because it helps the brain work better....kind of like rebooting your computer. :o) Oh well. I'll get over this, and move on today like my normal self. I just hope that I can help my mom out as much as I can. :o)

My pain level this morning is already between a 7 and 8. I hope that people that read my last entry, went to the web sites that I provided. :o)