Tuesday, September 26, 2006

Checking in.......


Well....good evening! :o) I was visiting Viv's jouranl tonight, and I really liked something she had written! And it's sooooo true! :o) "I'm too blessed to be stressed!" Thank you viv....I love it! :o) I just wanted to share that as well. :o)
Ok....update! Yesterday and today has been the very worse days I've ever encountered! :o( I prayed so hard for the strength I so desperatly need right now. No,,,I have not gotten sleep still! This is scaring me totally now! Not joking! So much has happened to my body just since this past 2 weeks! Right now I'm having such difficulty in seeing....it's like I have a "glaze" over my eyes! Everything is soooo bright! I had to wear my sunglasses in the house today just to see and ease the pain in my eyes! It's like looking through wax paper. Very frustrating and kind of scary as well. This entry alone is taking a lot of time just to type. Geesh! :o) or Bo) <-----sunglasses! :o) This morning I decided that I wasn't getting anywhere be trying to call my sleep specialist and the pain clinic! For some reason....no one was answering the phones! Odd I thought! Sooooo, I was in no mood to mess around and not get any help. I got to my car, and drove myself to the next town, and wanted to let my sleep specialist know that the pills he gave me were not working! I know I look horrid and a bit witchy...but I walked up to the desk to tell the receptionist that to let the doctor know the pills weren't helping me. Like I did the last time last week! I let her know...and the look on her face was pricless...lol...sorry...just had to laugh! :o) The office was packed, and she told me, without taking her eyes off of me, that I would be next to see the doctor! I was only there to maybe get another medicine. I mean I knew how horrid I looked...lol....but I suppose I look a lot worse then I thought! But...I was very glad that she did. :o) I was taken back and seen imediatly! Wow, I thought! The doctor came in and looked at me the same way! Bless his heart....he felt so bad for me that the medicine didn't help. :o) My whole body is swollen, My eyes are going nuts on me, I'm the weakest that I've ever been and in more pain then I've ever been in, I can barly hold my head up because it feels like it weighs at least 200 pounds! Which in turn is making my neck hurt tremendoulsy! I can make it to my bed then back to this chair....anyone that knows my home, knows the distance this is. I've been having more problems with urinating myself! I have that problem more so at night anyway....but I am now having that problem during the day, and I can't seem to do anything about it! It just happens! It honestly feels like my body is just doing things on it's own that I can not control! This is scary! Litterly! Anyway...my doctor is setting up 2 sleep studies for me to see what is going on! Thankfully! :o) The last time I went through this....and it was him that I was seeing, is when I went through a sleep study and found out that I had 3 sleep disorders. He is very concerned about my heart as well. He checked it thouroly and it is still beating very differently, and he is also concerned about me having 3 seizures so very close together as well....which isn't a very good sign! He brought up a theory that maybe I could be having seizures that I am not aware of....check out the differnt types of seizures I've posted....which could be in some way messing up my brain in a way that is telling my body not to sleep! Which does make a lot of sense to me! I have to go through an EEG as well when I have the sleep test done which I am glad about. :o) That will tell a lot! :o) I came home...dragged myself in, and got in bed to at least get my legs up, and I asked my daughter to make a post for me....Too sweet she is! :o) This evening...she was in here on my bed studying, and I got up to do my walking, and I started to fall over....and then it happened! I fell right on my right side, which is the wrose pain wise! Yeeouchie! I laned right on my right knee, hip and upper arm and shoulder! My knee started to swell more so and turned red, and now my should has a "crunchy" sound when I try to move it! It hurts like you know what! My daughter got me up....and then we had to laugh! LOL Because when I fell....it looked funny! ROFL!!! I fell in slow motion! lol Too funny! :o) I seem to be "ok," Everyone else is in bed when this happened. And now I'm still awake and in pain, and am afraid to get up again...even to go to the bathroom! But I push myself...I feel I need to do this for my brain...to keep it active, if that makes sense. I just hope I won't fall again. I have, though, decided if I do again tonight, I will take myself to the er! Because I have to! In my opinion....this is in humane! I honestly can't beleive that any doctor, or anyperson in their right mind is letting me be out on my own! I know that sounds terrible, but thats just how I feel....I feel that I shouldn't even be alone right now, and I should be monitored! I don't know. So, it brings me to right now! I can't be on the computer much at all right now...and I'll have my daughter post anything if something happens! :o) Please take care of yourselves and thank you so very much for your comments! God bless all of you! :o)

18 comments:

katie39041 said...

Im so sorry you are going through a living hell right now, sleep depprevation is a nightmare and i hope you get some proper sleep soon. I am thinking of getting a laptop so at least i can come on the pc more often while im tucked up in bed. You are in my prayers and thoughts and i hope you have a good day, love and hugs
katie x

nelishianatl said...

Sending you my love.  When you fell in slow motion, it sounds like a partial seizure like the ones I sometimes had when I was a kid.  Leg went to sleep suddenly numb but felt like my foot went through the floor when actually it hadn't. I fell alot too.  Wishing you sweet dreams.
Nelishia
http://journals.aol.com/nelishianatl/WISHINGANDHOPING/

my78novata said...

so sorry about all your going thru. I hope you get some help soon i will pray for you too

canyonsun04 said...

When is the sleep study going to be???? I hope they find something that helps. I wander if it isn't related to any new(er) medications. Have you started on anything new since this lack of sleep happened??? Could be causing insomnia.  I hope something comes through for you, I keep praying it does for you.
xoxoxo
Ang

jlocorriere05 said...

Lisa, I feel so sorry for all you're going through. I'm glad the doctor saw you right away, I'm sure you should be in hospital with this and being monitored, it's the only way they can get to the bottom of what's going on in your body. Bless your daughter, she sounds like an angel. Jeannette xx  http://journals.aol.co.uk/jlocorriere05/Welcometomytravels

pharmolo said...

You're going through a very black patch, Lisa - but you're keeping your head high. Keep it there

hugsdoodlewacky said...

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dbaumgartner said...

I truly hope help comes your way soon.  I just can't imagine the frustration and fear you are feeling.

Hugs my friend,

Deb

rainy35 said...

Lisa....it sure sounds like you need to be in the hospital being monitored right now.  It's ridiculous that these drs. aren't really doing anything.  Sleep deprivation makes you sicker physically.  At least it does me.  When are the sleep studies scheduled?  Are you seeing a neurologist for your MS?  What specialists are you seeing if you don't mind me asking?  I'm very concerned about you.  Keeping ya in my prayers hun.  Love Dana
http://journals.aol.com/rainy35/RaodToSuccess

lisa41076 said...

Lisa, Awwwwwwww I am so sorry your eyes are bothering you and sorry to hear you are still in pain too :( You are such a brave lady , It makes me sad such a sweet person as you has to go through so much pain :( I wish your doctor would try to help you more, Good luck with your next appt, Love Ya and Hugs Lisa

gehi6 said...

Lisa, I find it almost unbelievable you are so lucid, even your sense of humor kicking in, when you are going through such an ordeal, and your hauntingly beautiful graphic.  What a journey you are on, but this entry is a testimony of how strong the spirit can be in a body that is not working right.  Prayers for you.   Gerry

siennastarr said...

Sorry to hear you are feeling worse, Lisa..   My thoughts and prayers are with you.  Make sure your daughter keeps us updated!

Love your graphic.. BTW.. :)

Hugs
Jackie

http://journals.aol.com/siennastarr/Hopefloats/

astra1547 said...

Hi Lisa...

So sorry to hear your feeling so ill, my best wishes and thoughts are with you. Make sure you get the rest you need and i hope the new medication is of some help. your daughter sounds very nice and a great help to you..God Bless you!

Astra!

chat2missie said...

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millieukgirl said...

Lisa, I do hope you can get sorted out healthwise soon and get some relief from the way things are with you right now.  I'm thinking of you ~also~ thank you for leaving your comment on my journal, it means a lot that all of you lovely J~landers are sending prayers out at this sad time.  THANK YOU XXXX Millie :-)

beckerb6 said...

I am so sorry you are feeling worse I hope that you can get things figured out so you can get the rest that your body needs so badly to heal.
Barbara

merry1621 said...

Lisa, I am so sorry that so many things have continued not to go well for you!  I really agree that you should be monitored, so ER or whatever is necessary right now is what you should do.   I am praying for you  with all my heart.  I will watch your journal to check back to see if and when your daughter posts.  All of us who have come to know you love you, remember that.  Merry
http://journals.aol.com/merry1621/Merrysthoughtshopesdreamsgoal/

dearopie said...

You poor thing. I relate but my sleep problems are nowhere near as severe as your own. I'm amazed that you are able to so gracefully handle the situation. I would be a raving lunatic.

I know that you've probably tried everything but recently my sleep doctor handed me a "self-help" book that actually worked - imagine that!

I mean it wasn't easy and it definitely required work on my end but in following this 4-week program I was able to establish a healthy sleep cycle and am now sleeping soundly every night.

I've tried the meds and I tried all the herbs and ointments and nothing worked but this book: "Good Night - The Sleep Doctor's 4-Week Program to Better Sleep and Better Health" by Michael Breus actually worked. I swear by it.

I would LOVE for you to check it out...from one insomniac to another-my heart and best wishes go out to you.

xo Knoxly