Friday, June 8, 2007

Still....what do I do?

.....Just to let you know, nothing in this journal's entry is toward anyone in specific, I use it to write my feelings, and about my illnesess,and in hopes it might help someone else as I do. And if you might take an entry wrong and feel that it is about you, I'm sorry but It isn't, it just may seem to coincide with your own life. God bless you!......


 


 



 


Good morning....and I do hope that everyone is out of and/or not in pain.


Yesterday morning.....my physical therapist came. She didn't give me my deep tissue massage. Whew! There would be NO way I could handle it. Still in massive pain, and since she is a nurse as well...I told here what was going on with the neuro'e office and no call backs as yet!
Since he is in Middletown...and thats far for me to drive...she said that if I could find a way to go down there, it might help to just show up.
My son worked all day, the person staying here has no car, my mom worked all day...so, I didn't make it.
I called again when the office opened. Yes...a real person this time! I told her what has been happening to me, and these relapes that I've been going through. She got the nurse and put her on the phone and I talked to her. She told me that this was NOT good! Of course I agreed! No it isn't! She said that she was going to tell the Dr. right away and get me into the ms specialist...and then call me right back!
I'm STILL waiting!!!

My husband and I have been talking. Last night he told me how he's very upset over all of this! How he is watching me day by day...crying in so much pain and not being able to help me. And the Dr. isn't acting fast enough. How he's watching me lose different abilities quicker then we both thought would ever happen. He's even noticed how hard it is on me to even think...yes...something simple!!! He askes me simple questions...and it is taking me so much longer now to answer him back! :o( I feel so stupid at times.
We were both just sitting and talking last night about my future and how fast things are going for me. Well.. so do I. He feels so helpless. We both just sit and cry. We have no idea as to what to do.
Just still waiting! And the waiting is making me worse....and thats what I've told the nurseyesterday. Like I told DH last night...they don't have to feel this...what I'm feeling so they're not "right on" it! He said that he can see it in my eyes everynight when he comes home. I told him...if I knew what to do, I would let him know too. This sucks! It's inhumane! I'm losing more of my eyesight...and it's now to where I can't write with my hands! This stuff really is fast! What going to happen to me because I'm not on any ms meds?
Just keep me in your prayers.
Gods blessings to you all!


 



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17 comments:

Anonymous said...

So sorry you are having to endure all this. I hate waiting for call backs from Drs. GRRRR Makes me mad, to say the least!
Hope you have a better day, hear from the Dr, & have less pain.
Big gentle hugs,
Sug

Anonymous said...

you really need to get antoher dr and fast some stuff can be irreperable.

Anonymous said...

Oh Lisa, I have had so much of my own personal things going on I haven't been able to keep up with journals but I saw the heading of this one and opened it and I am so so sorry for what is happening to you.  You are always in my prayers sweetie so know that prayers are always out there for you, I hope you get to see the nuerologist soon.  Hang in there, sending you lots of Love & ((hugs)) Charmaine

Anonymous said...

HUN----
Please know that I am saying some constant major prayers for you.....those doctors just have to do something for you....be a pimple on their butt and KEEP CALLING...leave so many messages that it jams their system....DO NOT WAIT....you have got to get some meds....I understand totally how you and your hunnie feel about the illness moving quickly and your hunnie feels helpless...sounds like my hunnie....he is ALOT tougher then I am so emotionally he stays together alot more...but he does get VERY ANGRY and NASTY on the phone if doctors do not call back and such.....please know that I am here for you if you need a shoulder to lean on or a should to cry on....I AM HERE....
Be Blessed...and Take Care Of You!!!!!
-Ellie

Anonymous said...

h

Anonymous said...

you are always in my prayers....i wish the doctor took better care of you...or that you could get a new doc......i can not bear to think you are in pain.
XOXOOOOX lj

Anonymous said...

((((Lisa))))  I'm praying for you!  This is not right.  The dr. should be calling you right back!  I would be calling him every half hour and tell them you will continue to call until he calls you back!  This is INHUMANE!  Makes me so mad!  You can call the hospital he works out of and tell them you need him paged ASAP, that you keep calling him at his office and your calls are not being returned.  Hope he calls ya SOON!
Hugs,
D
http://journals.aol.com/heavenlybama/jourmey-to-success

Anonymous said...

Lisa, There is really something wrong with the system.  You get brushed off.  Your problems aren't "brush off kind!"  Is there any way you could somehow go to a different doctor?That may not be possible.  For me, I live in a rural area and I really don't have the option of just getting another doctor. So, maybe you don't either.   I know how hard it is to have pain and no answers.  I have pain that is almost intolerable this last week, and I am just hanging on by my fingernails until next Thursday when my doctor apt is.  Calling her wouldn't get me anywhere  Lisa, you are NOT alone in this, but saying that is of no comfort to you.  I am sorry, I only wish I could help.  I promise to pray overtime for you.  Keep us posted as to how things are going, please.  Do not give up!  Merry

Anonymous said...

Keeping you in prayers. I hope you can have a pain free weekend, and get some answers from that doctor. (((((hugs)))))))
Cindy

Anonymous said...

Lisa you are in my prayers...I would call AGAIN!!!

Michele

Anonymous said...

Candles are being lit now...

Anonymous said...

You continue to be in my thoughts, Lisa

Anonymous said...

Lisa I so feel for you! I am glad that you and your hubby were able to talk about this.
Kelli
http://journals.aol.com/kamdghwmw/noonmom

Anonymous said...

Mom I love you sooo much! Just hang in there some more, please. I wish that stupid doctor will finally call you back. You know, if something stupid really happens, you can file a lawsuit on that office, can't ya? I don't know. I love you!!! Glad to see that HE is finally seeing how things are now!! :)

Anonymous said...

Awwwwwww Lisa I'm so sorry to hear you are in pain, praying for you , Hugs Lisa

Anonymous said...

I do so hope you can get in to see the specialist and get some relief.  The pain just sounds intolerable.  I feel bad for you and everyone who is seeing what is happening. This has got to be hard for your whole family. It is like a miracle you can still keep posting entries.  I will be thinking of you.  Gerry  

Anonymous said...

I really suggest contacting my Tai Chi instructor. That book is his journey from being in a wheel chair taking 15 valium a day & tons of other meds to now you would not know he has MS. His eye comforting exercises have made this optic nerve pink & plump & now his eye doc gives them to all his MS patients to do.